http://www.gopetition.com/signatures/ankylosing-spondylitis-sign-up-for-change.html Online petition signatures en-us Wed, 15 Apr 2026 08:37 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://www.gopetition.com/signature/locate/24078324?utm_medium=rss I have Ankylosing Spondylitis. Have it since I was in my 30's. It's very painful, and disabling. Nothing eases the pain. I have to live with it.

]]> Fri, 9 Apr 2021 09:18:38 UTC 24078324 https://www.gopetition.com/signature/locate/23975856?utm_medium=rss Fri, 11 Dec 2020 12:06:29 UTC 23975856 https://www.gopetition.com/signature/locate/21767183?utm_medium=rss Sat, 4 Nov 2017 10:20:30 UTC 21767183 https://www.gopetition.com/signature/locate/21716781?utm_medium=rss Fri, 13 Oct 2017 10:41:23 UTC 21716781 https://www.gopetition.com/signature/locate/19553265?utm_medium=rss I also have this Probably since age 12. I am 58 I have been disabled since 2002.Although I was not diagnosed until 2013.I live in the u.s.a. and I'm finding out very misunderstood disease.I can not get proper treatment at all Oh and by the way I'm a woman not a guyI had been diagnosed with things like fibromyalgia mechanical back pain none of which fiber my algia definitely not I never believed I had that and I don't.Kept doing research and research because I knew those two diagnosis just were not correct so actually it was meAnd all that research took me to the best Rheumatologist for spondylitis in the United States He diagnosed me unfortunately he is not my doctor I don't live in HoustonYou know it didn't affect my daily living till I was 46 years old had a couple fractures that they never even saw on film in my spineSo I'm here to tell you but yeah maybe some people get away with it not affecting their daily living all their lives but unfortunately I'm not one of themI guess I look at it like at least I got 34 years of some what a normal life But now I'm here to tell you it's pure hell what I go through on a daily basis And believe me I do things all the time trying to help mys

]]> Fri, 11 Dec 2015 11:39:45 UTC 19553265 https://www.gopetition.com/signature/locate/18860681?utm_medium=rss I have AS and to only have 1 hospital in the country that really knows about the condition is rediculous!

]]> Fri, 8 May 2015 02:16:19 UTC 18860681 https://www.gopetition.com/signature/locate/18228615?utm_medium=rss I know that cannibis is being looked at for many illnesses here in the US and, although the National Institute Of Health here wud beg to differ, it HAS been proven to help with some leaving no doubt that it has medicinal properties. I, and my fellow AS sufferers do NOt with to 'get high', but to be rid of the constant, debilitating pain AS causes that makes it utterly impossible for us to lead fruitful lives. Thank you.

]]> Sun, 30 Nov 2014 09:25:24 UTC 18228615 https://www.gopetition.com/signature/locate/18119447?utm_medium=rss Sat, 8 Nov 2014 12:39:49 UTC 18119447 https://www.gopetition.com/signature/locate/18082358?utm_medium=rss Thu, 30 Oct 2014 12:42:41 UTC 18082358 https://www.gopetition.com/signature/locate/18053590?utm_medium=rss Wed, 22 Oct 2014 05:26:45 UTC 18053590 https://www.gopetition.com/signature/locate/18052639?utm_medium=rss I am searching for the cure...I know there isn't any..but still..plz God it is killing me..

]]> Wed, 22 Oct 2014 11:28:51 UTC 18052639 https://www.gopetition.com/signature/locate/18021570?utm_medium=rss consistently and better treatment centres please.

]]> Mon, 13 Oct 2014 09:25:03 UTC 18021570 https://www.gopetition.com/signature/locate/18018920?utm_medium=rss Sun, 12 Oct 2014 02:53:38 UTC 18018920 https://www.gopetition.com/signature/locate/18018866?utm_medium=rss my daughter has AS, she is a fighter(she has to be) she is alone with 3 children, the drs, hospital, etc etc just fob her off, its time IS recognised...

]]> Sun, 12 Oct 2014 02:26:02 UTC 18018866 https://www.gopetition.com/signature/locate/18017719?utm_medium=rss Sun, 12 Oct 2014 07:57:30 UTC 18017719 https://www.gopetition.com/signature/locate/18017572?utm_medium=rss Sun, 12 Oct 2014 07:00:13 UTC 18017572 https://www.gopetition.com/signature/locate/18017225?utm_medium=rss Sun, 12 Oct 2014 03:05:11 UTC 18017225 https://www.gopetition.com/signature/locate/18016146?utm_medium=rss Sat, 11 Oct 2014 04:07:08 UTC 18016146 https://www.gopetition.com/signature/locate/18016091?utm_medium=rss Sat, 11 Oct 2014 03:36:59 UTC 18016091 https://www.gopetition.com/signature/locate/18016074?utm_medium=rss Sat, 11 Oct 2014 03:30:35 UTC 18016074 https://www.gopetition.com/signature/locate/18016042?utm_medium=rss Sat, 11 Oct 2014 03:14:26 UTC 18016042 https://www.gopetition.com/signature/locate/18016025?utm_medium=rss Sat, 11 Oct 2014 03:01:32 UTC 18016025 https://www.gopetition.com/signature/locate/18015973?utm_medium=rss time to get this sorted

]]> Sat, 11 Oct 2014 02:30:32 UTC 18015973 https://www.gopetition.com/signature/locate/18015773?utm_medium=rss Sat, 11 Oct 2014 12:39:12 UTC 18015773 https://www.gopetition.com/signature/locate/18015732?utm_medium=rss Sat, 11 Oct 2014 12:12:42 UTC 18015732 https://www.gopetition.com/signature/locate/18015543?utm_medium=rss Sat, 11 Oct 2014 10:40:14 UTC 18015543 https://www.gopetition.com/signature/locate/18015339?utm_medium=rss My son was 'lucky' enough to be diagnosed with AS in it's early stages.It takes some people many years to finally get diagnosed but what's the point/advantage of an early diagnoses if all the following appointments and care are such a battle and take months upon months?????? Meanwhile his condition progresses at an alarming rate.

]]> Sat, 11 Oct 2014 09:24:45 UTC 18015339 https://www.gopetition.com/signature/locate/18015333?utm_medium=rss Sat, 11 Oct 2014 09:22:44 UTC 18015333 https://www.gopetition.com/signature/locate/17994923?utm_medium=rss Wed, 8 Oct 2014 06:25:54 UTC 17994923 https://www.gopetition.com/signature/locate/17994888?utm_medium=rss Wed, 8 Oct 2014 06:11:41 UTC 17994888 https://www.gopetition.com/signature/locate/17994297?utm_medium=rss Wed, 8 Oct 2014 02:06:22 UTC 17994297 https://www.gopetition.com/signature/locate/17961871?utm_medium=rss Tue, 30 Sep 2014 07:30:18 UTC 17961871 https://www.gopetition.com/signature/locate/17945985?utm_medium=rss AS is a painful condition which affects not only the patient but also family members who are in close contact. Psychologically, emotionally and other areas are largely dismissed or ignored, which only add to the frustration of those with AS. Still, many people have never heard of AS, including medical staff, which is not good news for patients or families. There needs to be a greater awakening so that others can understand more about this condition and the way it can impact suffers lives and the knock on effect to their families and friends.

]]> Wed, 24 Sep 2014 06:13:34 UTC 17945985 https://www.gopetition.com/signature/locate/17934754?utm_medium=rss Mon, 22 Sep 2014 07:08:21 UTC 17934754 https://www.gopetition.com/signature/locate/17842629?utm_medium=rss I am 25 and have AS. Despite having a great medical team around me from the NHS my diagnosis and struggling towards being somewhat stable and able to manage my condition has taken over 3 years, and continues.

]]> Sun, 14 Sep 2014 09:47:52 UTC 17842629 https://www.gopetition.com/signature/locate/17841945?utm_medium=rss Sun, 14 Sep 2014 03:38:53 UTC 17841945 https://www.gopetition.com/signature/locate/17834904?utm_medium=rss CHANGES NEED TO BE MADE FOR ANKYLOSING SPONDYLITIS

]]> Thu, 11 Sep 2014 03:00:33 UTC 17834904 https://www.gopetition.com/signature/locate/17805738?utm_medium=rss Tue, 2 Sep 2014 06:41:50 UTC 17805738 https://www.gopetition.com/signature/locate/17754687?utm_medium=rss Why why why is the help and support just not out there?

]]> Sun, 17 Aug 2014 01:45:59 UTC 17754687 https://www.gopetition.com/signature/locate/17731677?utm_medium=rss We need AS awareness to increase among professionals and the public .......it's time that AS services are readily available. It is a very painful and debilitating disease and deserves equality within the the NHS.

]]> Mon, 11 Aug 2014 12:18:07 UTC 17731677 https://www.gopetition.com/signature/locate/17698126?utm_medium=rss Wed, 6 Aug 2014 03:48:42 UTC 17698126 https://www.gopetition.com/signature/locate/17692567?utm_medium=rss Mon, 4 Aug 2014 04:33:49 UTC 17692567 https://www.gopetition.com/signature/locate/17670778?utm_medium=rss refused travel insurance because of my condition

]]> Tue, 29 Jul 2014 03:39:56 UTC 17670778 https://www.gopetition.com/signature/locate/17661121?utm_medium=rss Sat, 26 Jul 2014 04:47:13 UTC 17661121 https://www.gopetition.com/signature/locate/17659764?utm_medium=rss Spend some time in my shoes.

]]> Sat, 26 Jul 2014 05:09:14 UTC 17659764 https://www.gopetition.com/signature/locate/17646017?utm_medium=rss Tue, 22 Jul 2014 01:29:21 UTC 17646017 https://www.gopetition.com/signature/locate/17638522?utm_medium=rss Sat, 19 Jul 2014 02:44:53 UTC 17638522 https://www.gopetition.com/signature/locate/17621165?utm_medium=rss Tue, 15 Jul 2014 02:25:02 UTC 17621165 https://www.gopetition.com/signature/locate/17601393?utm_medium=rss Thu, 10 Jul 2014 05:29:46 UTC 17601393 https://www.gopetition.com/signature/locate/17544314?utm_medium=rss I found that for people like me with advanced AS the GPs are reluctant to refer you to a rheumatologist. It is vital for a rheumatologist to oversee your treatment throughout your life.

]]> Fri, 27 Jun 2014 02:48:43 UTC 17544314 https://www.gopetition.com/signature/locate/17526248?utm_medium=rss After 20 years, I finally got my diagnosis at aged 38 after assuming for the last 10 I just had a bad back and had to put up with it. Luckily I had access to an excellent rheumatologist who got me on the best treatment plan. Unfortunately it was too late, my employers did not understand my condition and assumed I was just underperforming and I was forced out of my job. I would hope oter people could avoid this fate.

]]> Mon, 23 Jun 2014 10:49:12 UTC 17526248 https://www.gopetition.com/signature/locate/17524465?utm_medium=rss Mon, 23 Jun 2014 03:10:28 UTC 17524465 https://www.gopetition.com/signature/locate/17516981?utm_medium=rss Fri, 20 Jun 2014 01:08:42 UTC 17516981 https://www.gopetition.com/signature/locate/17516970?utm_medium=rss I totally agree that A.S sufferers should get more help.

]]> Fri, 20 Jun 2014 01:04:54 UTC 17516970 https://www.gopetition.com/signature/locate/17513938?utm_medium=rss People with AS need to be helped. They too can be at par with the rest of the world.. just a gesture of cooperation n love from the society can help them to achieve their dreams..:-)

]]> Thu, 19 Jun 2014 03:05:50 UTC 17513938 https://www.gopetition.com/signature/locate/17476410?utm_medium=rss Thu, 12 Jun 2014 04:54:49 UTC 17476410 https://www.gopetition.com/signature/locate/17474218?utm_medium=rss Thu, 12 Jun 2014 09:04:17 UTC 17474218 https://www.gopetition.com/signature/locate/17465001?utm_medium=rss Tue, 10 Jun 2014 02:18:07 UTC 17465001 https://www.gopetition.com/signature/locate/17448742?utm_medium=rss Sat, 7 Jun 2014 12:56:54 UTC 17448742 https://www.gopetition.com/signature/locate/17445656?utm_medium=rss Fri, 6 Jun 2014 10:50:02 UTC 17445656 https://www.gopetition.com/signature/locate/17445049?utm_medium=rss Fri, 6 Jun 2014 08:08:36 UTC 17445049 https://www.gopetition.com/signature/locate/17444484?utm_medium=rss Fri, 6 Jun 2014 05:09:22 UTC 17444484 https://www.gopetition.com/signature/locate/17443224?utm_medium=rss Thu, 5 Jun 2014 06:33:21 UTC 17443224 https://www.gopetition.com/signature/locate/17443035?utm_medium=rss Thu, 5 Jun 2014 05:18:58 UTC 17443035 https://www.gopetition.com/signature/locate/17442926?utm_medium=rss Thu, 5 Jun 2014 04:49:01 UTC 17442926 https://www.gopetition.com/signature/locate/17442902?utm_medium=rss My daughter has AS.In Sheffield her care was excellent.In Milton Keynes it is not as good.

]]> Thu, 5 Jun 2014 04:42:26 UTC 17442902 https://www.gopetition.com/signature/locate/17442490?utm_medium=rss Thu, 5 Jun 2014 02:51:16 UTC 17442490 https://www.gopetition.com/signature/locate/17442455?utm_medium=rss Thu, 5 Jun 2014 02:40:55 UTC 17442455 https://www.gopetition.com/signature/locate/17442145?utm_medium=rss Thu, 5 Jun 2014 01:09:47 UTC 17442145 https://www.gopetition.com/signature/locate/17441619?utm_medium=rss Thu, 5 Jun 2014 10:36:17 UTC 17441619 https://www.gopetition.com/signature/locate/17441177?utm_medium=rss Thu, 5 Jun 2014 08:52:51 UTC 17441177 https://www.gopetition.com/signature/locate/17440650?utm_medium=rss Thu, 5 Jun 2014 06:49:55 UTC 17440650 https://www.gopetition.com/signature/locate/17440201?utm_medium=rss Thu, 5 Jun 2014 04:59:02 UTC 17440201 https://www.gopetition.com/signature/locate/17439908?utm_medium=rss Thu, 5 Jun 2014 03:49:55 UTC 17439908 https://www.gopetition.com/signature/locate/17439703?utm_medium=rss Thu, 5 Jun 2014 03:13:17 UTC 17439703 https://www.gopetition.com/signature/locate/17433346?utm_medium=rss I have only just been diagnosed with spondylitis don't really know enough about it yet but have been in really bad pain...and been told it gets worse ...I also have other medical conditions so I'm worried how I'm gonna cope ...every day... its not nice at all up to now ...

]]> Tue, 3 Jun 2014 04:19:14 UTC 17433346 https://www.gopetition.com/signature/locate/17430616?utm_medium=rss Tue, 3 Jun 2014 07:17:22 UTC 17430616 https://www.gopetition.com/signature/locate/17409739?utm_medium=rss Sat, 31 May 2014 10:14:53 UTC 17409739 https://www.gopetition.com/signature/locate/17382472?utm_medium=rss Tue, 27 May 2014 10:22:42 UTC 17382472 https://www.gopetition.com/signature/locate/17373636?utm_medium=rss Mon, 26 May 2014 07:16:34 UTC 17373636 https://www.gopetition.com/signature/locate/17373478?utm_medium=rss Mon, 26 May 2014 06:51:41 UTC 17373478 https://www.gopetition.com/signature/locate/17368689?utm_medium=rss Sun, 25 May 2014 04:08:39 UTC 17368689 https://www.gopetition.com/signature/locate/17362754?utm_medium=rss Any help that will raise awareness to this condition is crucial.

]]> Sat, 24 May 2014 05:58:31 UTC 17362754 https://www.gopetition.com/signature/locate/17361197?utm_medium=rss This is disabling disease im31 and spend most of my time on crutches, more needs to be done to help other with this condition, its so painful and a good nights sleep would be great!

]]> Sat, 24 May 2014 02:31:01 UTC 17361197 https://www.gopetition.com/signature/locate/17348194?utm_medium=rss Fri, 23 May 2014 10:33:45 UTC 17348194 https://www.gopetition.com/signature/locate/17336467?utm_medium=rss Wed, 21 May 2014 06:33:29 UTC 17336467 https://www.gopetition.com/signature/locate/17335372?utm_medium=rss Wed, 21 May 2014 01:35:26 UTC 17335372 https://www.gopetition.com/signature/locate/17334442?utm_medium=rss Wed, 21 May 2014 10:49:00 UTC 17334442 https://www.gopetition.com/signature/locate/17334421?utm_medium=rss Wed, 21 May 2014 10:46:36 UTC 17334421 https://www.gopetition.com/signature/locate/17334377?utm_medium=rss Wed, 21 May 2014 10:41:53 UTC 17334377 https://www.gopetition.com/signature/locate/17330674?utm_medium=rss Tue, 20 May 2014 05:11:10 UTC 17330674 https://www.gopetition.com/signature/locate/17330658?utm_medium=rss Tue, 20 May 2014 05:05:23 UTC 17330658 https://www.gopetition.com/signature/locate/17327266?utm_medium=rss Would love to have some imformation on support groups and charities to do with spondylitis with mylopathy any help would be appreciated

]]> Tue, 20 May 2014 04:17:14 UTC 17327266 https://www.gopetition.com/signature/locate/17324919?utm_medium=rss Mon, 19 May 2014 04:13:19 UTC 17324919 https://www.gopetition.com/signature/locate/17324117?utm_medium=rss Mon, 19 May 2014 12:58:27 UTC 17324117 https://www.gopetition.com/signature/locate/17323910?utm_medium=rss Mon, 19 May 2014 11:55:17 UTC 17323910 https://www.gopetition.com/signature/locate/17316547?utm_medium=rss any disease, that in any way prevents a person from leading a comfortable "normal" life, has to be treated the same way as a "major " health condition. No one should be discriminated against

]]> Sun, 18 May 2014 01:39:49 UTC 17316547 https://www.gopetition.com/signature/locate/17274796?utm_medium=rss Sun, 11 May 2014 06:14:41 UTC 17274796 https://www.gopetition.com/signature/locate/17270348?utm_medium=rss Sat, 10 May 2014 05:56:07 UTC 17270348 https://www.gopetition.com/signature/locate/17260296?utm_medium=rss Thu, 8 May 2014 02:57:54 UTC 17260296