Foetal Anticonvulsant Syndromes Awareness Petition: Signature List Feed

Ms Rebecca Hodge [Signature #8]

Wed, 14 Aug 2013 01:11:34 UTC

Ms Rebecca Hodge, Mitiamo, Victoria, Australia

This syndrome and also Fetal Valproate Syndrome, needs to be recognized in Australia and by our government. There are families out there, mine included, that are feeling isolated and made to think it doesn't matter and our children don't matter. Time for change and awareness to help the ones affected!

Mrs Gemma Vaggers [Signature #7]

Sat, 6 Apr 2013 04:42:12 UTC

Mrs Gemma Vaggers, Great Torrington, North Devon, United Kingdom

I Have 2 children with FVS, if relevant information had been available to me before conception then we certainly would not have entertained the idea of having children, neurologists need to be more aware of problems anticonvulsants cause.

Mrs Fiona Harpley [Signature #6]

Sat, 6 Apr 2013 03:16:39 UTC

Mrs Fiona Harpley, Gawler, Tasmania, Australia

Mrs Cassandra Lee [Signature #5]

Fri, 5 Apr 2013 08:27:55 UTC

Mrs Cassandra Lee, East Devonport, Tas, Australia

My 6 year old son has been diagnosed with Feotal Vaproate Syndrome. He has facial features, genital defects, autistic tendencies, learning disabilities, behavioural problems and other physical defects. Even so we are lucky as he doesn't have any of the fatal defects, and he can walk and talk. I was never told that I had a 20-40% chance that my son would be born affected by my epilepsy medication. I wasn't told what I was risking, or how likely it was. I was not planning on being pregnant. This medication (sodium valproate) should NEVER be given to a woman of child baring age unless there is no other medication that will be effective. Please at least make sure other women are at least informed of the risk they are taking.

Ms Heidi Deifel-Carlino [Signature #4]

Wed, 8 Aug 2012 08:26:50 UTC

Ms Heidi Deifel-Carlino, Brisbane, QLD, Australia

My daughter is 13 years old and diagnosed with Valproate Syndrome. During my pregnancy my Dr reasurred me multiple times that it was safe to take this medication, it was NOT. Paige was diagnosed with cardiac abnormalities whilst I was still pregnant even, and when she was born we endured several years of hospital almost permanently, therapy, learning support, surgeries, and more to come. My daughter now has more congenital abnormalities to add to the neverending list of health problems she will endure for her life. I love my daughter and I have to wonder what kind of life she would have if I didn't take this medication. I have to live with what I have done to my daughter forever but she has to be the example of it. I would NEVER have knowingly taken a risk to subject my unborn child to the risk of mutiple congenital abnormalities that can often be life threatening, intellectual impairment, facial disfigurement, ect ect. Would you take that risk with your baby?

Ms Rebecca Hodge [Signature #3]

Mon, 30 Jul 2012 12:34:22 UTC

Ms Rebecca Hodge, Mitiamo, Vic, Australia

Mrs Leigh Etherington [Signature #2]

Fri, 4 May 2012 03:40:03 UTC

Mrs Leigh Etherington, Seaford Rise, S.A, Australia

Mrs Amanda Short [Signature #1]

Thu, 3 May 2012 08:54:36 UTC

Mrs Amanda Short, Erskine Park, N.S.W, Australia

Let's make Australia aware of Foetal Anticonvulsant Syndromes!