http://www.gopetition.com/signatures/in-support-of-canadian-rare-disease-plan-and-orphan-drug-policy.html Online petition signatures en-us Sun, 12 Apr 2026 09:32 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://www.gopetition.com/signature/locate/21327372?utm_medium=rss Thu, 11 May 2017 06:34:14 UTC 21327372 https://www.gopetition.com/signature/locate/20369778?utm_medium=rss THIS NEEDS TO CHANGE NOW----

]]> Mon, 19 Sep 2016 08:47:00 UTC 20369778 https://www.gopetition.com/signature/locate/19007099?utm_medium=rss Sat, 27 Jun 2015 10:45:14 UTC 19007099 https://www.gopetition.com/signature/locate/18607657?utm_medium=rss Sat, 28 Feb 2015 09:21:21 UTC 18607657 https://www.gopetition.com/signature/locate/16915477?utm_medium=rss Fri, 28 Feb 2014 09:10:49 UTC 16915477 https://www.gopetition.com/signature/locate/16915098?utm_medium=rss Fri, 28 Feb 2014 08:08:03 UTC 16915098 https://www.gopetition.com/signature/locate/16914991?utm_medium=rss Fri, 28 Feb 2014 07:49:37 UTC 16914991 https://www.gopetition.com/signature/locate/16914874?utm_medium=rss Fri, 28 Feb 2014 07:26:54 UTC 16914874 https://www.gopetition.com/signature/locate/16912300?utm_medium=rss Thu, 27 Feb 2014 09:02:47 UTC 16912300 https://www.gopetition.com/signature/locate/16912215?utm_medium=rss Thu, 27 Feb 2014 08:47:58 UTC 16912215 https://www.gopetition.com/signature/locate/16755895?utm_medium=rss Sat, 8 Feb 2014 09:50:57 UTC 16755895 https://www.gopetition.com/signature/locate/16683638?utm_medium=rss Sat, 25 Jan 2014 02:56:33 UTC 16683638 https://www.gopetition.com/signature/locate/16682388?utm_medium=rss Sat, 25 Jan 2014 07:53:12 UTC 16682388 https://www.gopetition.com/signature/locate/16682222?utm_medium=rss Sat, 25 Jan 2014 06:41:40 UTC 16682222 https://www.gopetition.com/signature/locate/16681811?utm_medium=rss Sat, 25 Jan 2014 03:04:10 UTC 16681811 https://www.gopetition.com/signature/locate/16681535?utm_medium=rss Sat, 25 Jan 2014 12:12:11 UTC 16681535 https://www.gopetition.com/signature/locate/16681534?utm_medium=rss Sat, 25 Jan 2014 12:11:51 UTC 16681534 https://www.gopetition.com/signature/locate/16681400?utm_medium=rss Fri, 24 Jan 2014 10:24:59 UTC 16681400 https://www.gopetition.com/signature/locate/16639229?utm_medium=rss Thu, 16 Jan 2014 04:29:38 UTC 16639229 https://www.gopetition.com/signature/locate/16310213?utm_medium=rss Mon, 25 Nov 2013 11:32:58 UTC 16310213 https://www.gopetition.com/signature/locate/16309950?utm_medium=rss Mon, 25 Nov 2013 10:44:39 UTC 16309950 https://www.gopetition.com/signature/locate/16270013?utm_medium=rss Thu, 21 Nov 2013 03:19:01 UTC 16270013 https://www.gopetition.com/signature/locate/16054980?utm_medium=rss Sun, 27 Oct 2013 05:22:22 UTC 16054980 https://www.gopetition.com/signature/locate/15496264?utm_medium=rss Tue, 9 Jul 2013 08:45:30 UTC 15496264 https://www.gopetition.com/signature/locate/15129275?utm_medium=rss Thu, 25 Apr 2013 04:23:46 UTC 15129275 https://www.gopetition.com/signature/locate/15104514?utm_medium=rss Sat, 20 Apr 2013 10:09:44 UTC 15104514 https://www.gopetition.com/signature/locate/14971213?utm_medium=rss Mon, 25 Mar 2013 01:09:36 UTC 14971213 https://www.gopetition.com/signature/locate/14838222?utm_medium=rss Wed, 6 Mar 2013 10:28:01 UTC 14838222 https://www.gopetition.com/signature/locate/14801079?utm_medium=rss Sat, 2 Mar 2013 11:38:19 UTC 14801079 https://www.gopetition.com/signature/locate/14800554?utm_medium=rss Sat, 2 Mar 2013 09:25:03 UTC 14800554 https://www.gopetition.com/signature/locate/14797403?utm_medium=rss Sat, 2 Mar 2013 11:44:44 UTC 14797403 https://www.gopetition.com/signature/locate/14792884?utm_medium=rss Fri, 1 Mar 2013 04:01:11 UTC 14792884 https://www.gopetition.com/signature/locate/14787569?utm_medium=rss Fri, 1 Mar 2013 12:18:49 UTC 14787569 https://www.gopetition.com/signature/locate/14787396?utm_medium=rss Thu, 28 Feb 2013 11:28:06 UTC 14787396 https://www.gopetition.com/signature/locate/14786609?utm_medium=rss Thu, 28 Feb 2013 08:34:49 UTC 14786609 https://www.gopetition.com/signature/locate/14786583?utm_medium=rss Thu, 28 Feb 2013 08:29:25 UTC 14786583 https://www.gopetition.com/signature/locate/14786429?utm_medium=rss Thu, 28 Feb 2013 07:59:10 UTC 14786429 https://www.gopetition.com/signature/locate/14786411?utm_medium=rss Thu, 28 Feb 2013 07:52:40 UTC 14786411 https://www.gopetition.com/signature/locate/14786365?utm_medium=rss Thu, 28 Feb 2013 07:44:02 UTC 14786365 https://www.gopetition.com/signature/locate/14786311?utm_medium=rss Thu, 28 Feb 2013 07:29:10 UTC 14786311 https://www.gopetition.com/signature/locate/14785956?utm_medium=rss Thu, 28 Feb 2013 06:17:45 UTC 14785956 https://www.gopetition.com/signature/locate/14785682?utm_medium=rss Thu, 28 Feb 2013 05:18:07 UTC 14785682 https://www.gopetition.com/signature/locate/14785372?utm_medium=rss Thu, 28 Feb 2013 04:23:16 UTC 14785372 https://www.gopetition.com/signature/locate/14784608?utm_medium=rss Thu, 28 Feb 2013 02:23:01 UTC 14784608 https://www.gopetition.com/signature/locate/14784564?utm_medium=rss Thu, 28 Feb 2013 02:16:46 UTC 14784564 https://www.gopetition.com/signature/locate/14784106?utm_medium=rss Thu, 28 Feb 2013 01:18:23 UTC 14784106 https://www.gopetition.com/signature/locate/14783497?utm_medium=rss Thu, 28 Feb 2013 11:55:14 UTC 14783497 https://www.gopetition.com/signature/locate/14783194?utm_medium=rss Thu, 28 Feb 2013 11:10:20 UTC 14783194 https://www.gopetition.com/signature/locate/14783158?utm_medium=rss Thu, 28 Feb 2013 11:04:20 UTC 14783158 https://www.gopetition.com/signature/locate/14783025?utm_medium=rss Just like anything else that needs awareness, this is no exception! Spreading the word and sharing the love!!

]]> Thu, 28 Feb 2013 10:45:04 UTC 14783025 https://www.gopetition.com/signature/locate/14783023?utm_medium=rss Thu, 28 Feb 2013 10:44:45 UTC 14783023 https://www.gopetition.com/signature/locate/14782961?utm_medium=rss Thu, 28 Feb 2013 10:36:39 UTC 14782961 https://www.gopetition.com/signature/locate/14782942?utm_medium=rss Thu, 28 Feb 2013 10:34:10 UTC 14782942 https://www.gopetition.com/signature/locate/14782932?utm_medium=rss Thu, 28 Feb 2013 10:32:17 UTC 14782932 https://www.gopetition.com/signature/locate/14782881?utm_medium=rss Thu, 28 Feb 2013 10:25:16 UTC 14782881 https://www.gopetition.com/signature/locate/14782760?utm_medium=rss http://withoutamanual.blogspot.ca/2013/02/another-one-passes-without-change.html

]]> Thu, 28 Feb 2013 10:05:51 UTC 14782760 https://www.gopetition.com/signature/locate/14782740?utm_medium=rss Thu, 28 Feb 2013 10:02:55 UTC 14782740 https://www.gopetition.com/signature/locate/14782719?utm_medium=rss Thu, 28 Feb 2013 09:59:45 UTC 14782719 https://www.gopetition.com/signature/locate/14782704?utm_medium=rss Thu, 28 Feb 2013 09:56:29 UTC 14782704 https://www.gopetition.com/signature/locate/14782694?utm_medium=rss Thu, 28 Feb 2013 09:54:15 UTC 14782694 https://www.gopetition.com/signature/locate/14782664?utm_medium=rss Thu, 28 Feb 2013 09:48:08 UTC 14782664 https://www.gopetition.com/signature/locate/14782594?utm_medium=rss I support this petition fully.

]]> Thu, 28 Feb 2013 09:38:57 UTC 14782594 https://www.gopetition.com/signature/locate/14782543?utm_medium=rss Thu, 28 Feb 2013 09:30:41 UTC 14782543 https://www.gopetition.com/signature/locate/14782542?utm_medium=rss Thu, 28 Feb 2013 09:30:25 UTC 14782542 https://www.gopetition.com/signature/locate/14782520?utm_medium=rss Thu, 28 Feb 2013 09:27:30 UTC 14782520 https://www.gopetition.com/signature/locate/14782465?utm_medium=rss Thu, 28 Feb 2013 09:17:42 UTC 14782465 https://www.gopetition.com/signature/locate/14781995?utm_medium=rss Thu, 28 Feb 2013 08:09:32 UTC 14781995 https://www.gopetition.com/signature/locate/14612697?utm_medium=rss My son has a rare disease called Barth Syndrome

]]> Sat, 2 Feb 2013 02:14:13 UTC 14612697 https://www.gopetition.com/signature/locate/14459842?utm_medium=rss I have a rare disease and I know how it could be difficult to get a diagnosis.

]]> Thu, 17 Jan 2013 03:29:49 UTC 14459842 https://www.gopetition.com/signature/locate/14294169?utm_medium=rss Fri, 28 Dec 2012 10:18:41 UTC 14294169 https://www.gopetition.com/signature/locate/14243986?utm_medium=rss I suffer from Ehlers-Danlos/hypermobility.

]]> Sat, 15 Dec 2012 02:40:17 UTC 14243986 https://www.gopetition.com/signature/locate/14085146?utm_medium=rss This failure of our system is an embarrassment to me as a Canadian

]]> Thu, 15 Nov 2012 07:42:58 UTC 14085146 https://www.gopetition.com/signature/locate/14044995?utm_medium=rss my daughter was just diagnosed with a very rare disease that has no cure and very little treatment options. Getting any coverage and financial support for her medications and care has been impossble. there is no support, no programs for families in this situation. She is only 3

]]> Mon, 5 Nov 2012 08:34:08 UTC 14044995 https://www.gopetition.com/signature/locate/14027331?utm_medium=rss Thu, 1 Nov 2012 01:25:18 UTC 14027331 https://www.gopetition.com/signature/locate/13963890?utm_medium=rss Parents of children with rare diseases have enough to deal with. The last thing that they need to worry about is what type of support they are going to get from the government. Let's right a wrong.

]]> Fri, 19 Oct 2012 09:42:25 UTC 13963890 https://www.gopetition.com/signature/locate/13948858?utm_medium=rss Tue, 16 Oct 2012 12:36:43 UTC 13948858 https://www.gopetition.com/signature/locate/13948480?utm_medium=rss My daughters have Branchio-oto-Renal Syndrome -- we need support for expert treament centures, drug approval, screening and support for patients and parents. Let's get caught up Canada, we are behind with our orphan disease/drug policies and definitions of RARE.

]]> Tue, 16 Oct 2012 11:25:52 UTC 13948480 https://www.gopetition.com/signature/locate/13770582?utm_medium=rss Sun, 16 Sep 2012 07:57:40 UTC 13770582 https://www.gopetition.com/signature/locate/13743364?utm_medium=rss Wed, 12 Sep 2012 01:47:17 UTC 13743364 https://www.gopetition.com/signature/locate/13595649?utm_medium=rss Thu, 23 Aug 2012 08:01:09 UTC 13595649 https://www.gopetition.com/signature/locate/13492433?utm_medium=rss Mon, 6 Aug 2012 02:51:51 UTC 13492433 https://www.gopetition.com/signature/locate/13418079?utm_medium=rss Thu, 26 Jul 2012 02:01:47 UTC 13418079 https://www.gopetition.com/signature/locate/13362973?utm_medium=rss We are Canadians who had to leave the country and supported by our Alberta Physician to be close to the only doctors who can diagnosie and treat our rare conditions. My children and I have had surgeries getting off medications the reverse. You need to add testing, diagnosis, treatament(surgeries) and rehabilitation. We want to live and loosing income and assets only being able to claim 17% of the expenses is wrong. We cannot wait. No doctor will help us because the Health Minister told us to get a lawyer and then said they could not help us. without our medications that we need by Saturday we will have heart attack/seizure/stroke/stop breathing and sats dropping off.We need money that we do not have and we cannot be at the altitude. To go to court is impossible because there are no doctors who can or are able to treat us. Being accused of Munchousen by Proxy to cover up the neurosurgeons mistakes! Abusing my children in the University Hospital.

]]> Thu, 19 Jul 2012 09:13:26 UTC 13362973 https://www.gopetition.com/signature/locate/13278256?utm_medium=rss Mon, 9 Jul 2012 09:50:09 UTC 13278256 https://www.gopetition.com/signature/locate/13242587?utm_medium=rss Everyone should be treated equally. A battle that has been fought forever. Were getting there. Lets keep working towards that goal.

]]> Wed, 4 Jul 2012 12:02:38 UTC 13242587 https://www.gopetition.com/signature/locate/13232353?utm_medium=rss Mon, 2 Jul 2012 11:39:42 UTC 13232353 https://www.gopetition.com/signature/locate/13206942?utm_medium=rss Thu, 28 Jun 2012 11:27:04 UTC 13206942 https://www.gopetition.com/signature/locate/13159124?utm_medium=rss Thu, 21 Jun 2012 08:44:15 UTC 13159124 https://www.gopetition.com/signature/locate/13131509?utm_medium=rss I support the cause, you must do the same.

]]> Mon, 18 Jun 2012 05:05:58 UTC 13131509 https://www.gopetition.com/signature/locate/12962830?utm_medium=rss Thu, 31 May 2012 12:12:15 UTC 12962830 https://www.gopetition.com/signature/locate/12960822?utm_medium=rss Thu, 31 May 2012 07:58:33 UTC 12960822 https://www.gopetition.com/signature/locate/12923732?utm_medium=rss Sun, 27 May 2012 04:41:22 UTC 12923732 https://www.gopetition.com/signature/locate/12905424?utm_medium=rss Thu, 24 May 2012 02:43:20 UTC 12905424 https://www.gopetition.com/signature/locate/12894803?utm_medium=rss Wed, 23 May 2012 11:05:35 UTC 12894803 https://www.gopetition.com/signature/locate/12861270?utm_medium=rss Fri, 18 May 2012 08:14:07 UTC 12861270 https://www.gopetition.com/signature/locate/12850863?utm_medium=rss Thu, 17 May 2012 08:12:57 UTC 12850863 https://www.gopetition.com/signature/locate/12844105?utm_medium=rss Let them have the drugs that are needed. At a price that is affordable for all. They are suffering as it is, don't add to their torment.

]]> Thu, 17 May 2012 12:03:01 UTC 12844105 https://www.gopetition.com/signature/locate/12843565?utm_medium=rss Thu, 17 May 2012 10:57:25 UTC 12843565 https://www.gopetition.com/signature/locate/12843384?utm_medium=rss Thu, 17 May 2012 10:35:39 UTC 12843384 https://www.gopetition.com/signature/locate/12843116?utm_medium=rss Thu, 17 May 2012 09:58:56 UTC 12843116