http://www.gopetition.com/signatures/keep-the-eds-rcgp-toolkit-hosted-on-the-rcgp-website.html Online petition signatures en-us Mon, 6 Apr 2026 12:50 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://www.gopetition.com/signature/locate/24526515?utm_medium=rss Wed, 6 Aug 2025 05:52:19 UTC 24526515 https://www.gopetition.com/signature/locate/24442649?utm_medium=rss Wed, 27 Sep 2023 05:15:08 UTC 24442649 https://www.gopetition.com/signature/locate/24370439?utm_medium=rss Wed, 11 Jan 2023 07:38:53 UTC 24370439 https://www.gopetition.com/signature/locate/24331846?utm_medium=rss Fri, 12 Aug 2022 11:19:19 UTC 24331846 https://www.gopetition.com/signature/locate/24255024?utm_medium=rss Sat, 7 May 2022 07:36:07 UTC 24255024 https://www.gopetition.com/signature/locate/24254788?utm_medium=rss Fri, 6 May 2022 07:34:20 UTC 24254788 https://www.gopetition.com/signature/locate/24241792?utm_medium=rss Mon, 28 Mar 2022 04:34:12 UTC 24241792 https://www.gopetition.com/signature/locate/24213312?utm_medium=rss Thu, 27 Jan 2022 10:18:47 UTC 24213312 https://www.gopetition.com/signature/locate/24164187?utm_medium=rss Ehlers-Danlos syndrome is still commonly under diagnosed and poorly understood by medical professionals. And so to remove this sounds extremely counter intuitive. I therefore support and ask that the EDS RCGP Toolkit remains in place until an alternative host can be found.

]]> Sun, 5 Sep 2021 01:59:37 UTC 24164187 https://www.gopetition.com/signature/locate/24143828?utm_medium=rss The toolkit has really helped me and new GPs I've seen since my last GP left the practice. It saves them having to face the same odyssey I have for over 40 years. It's much easier for them to take steps and be confident when there is guidance from a respected national body. Without the toolkit available to my GPs, I wouldn't have sought help with the latest issues I have and may well have resorted to potentially harmful self medication. Please don't make that the easiest option for me and very many other vulnerable people. This toolkit is a life saver.

]]> Mon, 5 Jul 2021 10:06:29 UTC 24143828 https://www.gopetition.com/signature/locate/24142928?utm_medium=rss Wed, 30 Jun 2021 09:25:07 UTC 24142928 https://www.gopetition.com/signature/locate/24137637?utm_medium=rss Sat, 19 Jun 2021 11:48:42 UTC 24137637 https://www.gopetition.com/signature/locate/24134097?utm_medium=rss Sat, 12 Jun 2021 09:25:54 UTC 24134097 https://www.gopetition.com/signature/locate/24117398?utm_medium=rss Tue, 25 May 2021 03:42:42 UTC 24117398 https://www.gopetition.com/signature/locate/24117115?utm_medium=rss Tue, 25 May 2021 08:26:04 UTC 24117115 https://www.gopetition.com/signature/locate/24111639?utm_medium=rss Wed, 19 May 2021 09:32:28 UTC 24111639 https://www.gopetition.com/signature/locate/24110419?utm_medium=rss Mon, 17 May 2021 05:17:36 UTC 24110419 https://www.gopetition.com/signature/locate/24110384?utm_medium=rss Mon, 17 May 2021 03:12:56 UTC 24110384 https://www.gopetition.com/signature/locate/24110281?utm_medium=rss Mon, 17 May 2021 10:24:24 UTC 24110281 https://www.gopetition.com/signature/locate/24110263?utm_medium=rss Mon, 17 May 2021 09:21:12 UTC 24110263 https://www.gopetition.com/signature/locate/24108691?utm_medium=rss Sat, 15 May 2021 10:47:10 UTC 24108691 https://www.gopetition.com/signature/locate/24108162?utm_medium=rss Fri, 14 May 2021 04:54:11 UTC 24108162 https://www.gopetition.com/signature/locate/24108129?utm_medium=rss Fri, 14 May 2021 04:08:15 UTC 24108129 https://www.gopetition.com/signature/locate/24108114?utm_medium=rss Fri, 14 May 2021 03:48:38 UTC 24108114 https://www.gopetition.com/signature/locate/24108110?utm_medium=rss Fri, 14 May 2021 03:46:38 UTC 24108110 https://www.gopetition.com/signature/locate/24106524?utm_medium=rss Thu, 13 May 2021 09:09:37 UTC 24106524 https://www.gopetition.com/signature/locate/24099508?utm_medium=rss Sat, 8 May 2021 02:38:26 UTC 24099508 https://www.gopetition.com/signature/locate/24096070?utm_medium=rss Thu, 6 May 2021 09:45:28 UTC 24096070 https://www.gopetition.com/signature/locate/24096058?utm_medium=rss Thu, 6 May 2021 09:43:16 UTC 24096058 https://www.gopetition.com/signature/locate/24094098?utm_medium=rss These resources are so vital for patients with EDS, please do not make access to the scant information there is unavailable.

]]> Wed, 5 May 2021 12:11:07 UTC 24094098 https://www.gopetition.com/signature/locate/24091470?utm_medium=rss Thu, 29 Apr 2021 11:52:18 UTC 24091470 https://www.gopetition.com/signature/locate/24089202?utm_medium=rss Tue, 27 Apr 2021 03:23:18 UTC 24089202 https://www.gopetition.com/signature/locate/24083490?utm_medium=rss Wed, 21 Apr 2021 09:57:46 UTC 24083490 https://www.gopetition.com/signature/locate/24077916?utm_medium=rss Thu, 8 Apr 2021 10:04:32 UTC 24077916 https://www.gopetition.com/signature/locate/24077118?utm_medium=rss As a sufferer of EDS I have encountered multiple medical professionals with absolutely no idea what EDS can entail. This toolkit is essential in the fight for awareness

]]> Tue, 6 Apr 2021 11:22:52 UTC 24077118 https://www.gopetition.com/signature/locate/24068386?utm_medium=rss Thu, 25 Mar 2021 06:03:38 UTC 24068386 https://www.gopetition.com/signature/locate/24063184?utm_medium=rss Thu, 18 Mar 2021 10:58:56 UTC 24063184 https://www.gopetition.com/signature/locate/24060987?utm_medium=rss This is an important toolkit that can help spread the word about EDS, giving medical professionals guidance and confidence when making a diagnosis.

]]> Mon, 15 Mar 2021 09:13:06 UTC 24060987 https://www.gopetition.com/signature/locate/24060147?utm_medium=rss GPS need support to help them support patients pre and post diagnosis. Late diagnosis is physically exhausting and mentally extremely stressful.. Late diagnosis leads years of misery without access to treatment.

]]> Sat, 13 Mar 2021 11:56:59 UTC 24060147 https://www.gopetition.com/signature/locate/24057849?utm_medium=rss Thu, 11 Mar 2021 09:41:12 UTC 24057849 https://www.gopetition.com/signature/locate/24053224?utm_medium=rss The toolkit is invaluable for better understanding of EDS for GPs.

]]> Sat, 6 Mar 2021 10:32:27 UTC 24053224 https://www.gopetition.com/signature/locate/24053149?utm_medium=rss Please, this is an invaluable resource. I have just directed my gp to it! They knew nothing about EDS!

]]> Sat, 6 Mar 2021 04:26:53 UTC 24053149 https://www.gopetition.com/signature/locate/24052246?utm_medium=rss Thu, 4 Mar 2021 06:12:27 UTC 24052246 https://www.gopetition.com/signature/locate/24050846?utm_medium=rss Wed, 3 Mar 2021 12:02:16 UTC 24050846 https://www.gopetition.com/signature/locate/24049332?utm_medium=rss Sun, 28 Feb 2021 08:04:22 UTC 24049332 https://www.gopetition.com/signature/locate/24046007?utm_medium=rss Wed, 24 Feb 2021 06:13:01 UTC 24046007 https://www.gopetition.com/signature/locate/24045730?utm_medium=rss Wed, 24 Feb 2021 10:23:23 UTC 24045730 https://www.gopetition.com/signature/locate/24044989?utm_medium=rss Tue, 23 Feb 2021 03:04:06 UTC 24044989 https://www.gopetition.com/signature/locate/24042145?utm_medium=rss Sat, 20 Feb 2021 02:31:50 UTC 24042145 https://www.gopetition.com/signature/locate/24041469?utm_medium=rss Fri, 19 Feb 2021 09:43:53 UTC 24041469 https://www.gopetition.com/signature/locate/24038033?utm_medium=rss Tue, 16 Feb 2021 01:04:51 UTC 24038033 https://www.gopetition.com/signature/locate/24037781?utm_medium=rss Mon, 15 Feb 2021 09:05:56 UTC 24037781 https://www.gopetition.com/signature/locate/24037646?utm_medium=rss Mon, 15 Feb 2021 06:46:44 UTC 24037646 https://www.gopetition.com/signature/locate/24036574?utm_medium=rss Sun, 14 Feb 2021 07:35:55 UTC 24036574 https://www.gopetition.com/signature/locate/24035147?utm_medium=rss This is important for public and professionals to access this information

]]> Sat, 13 Feb 2021 03:41:36 UTC 24035147 https://www.gopetition.com/signature/locate/24033969?utm_medium=rss Fri, 12 Feb 2021 05:39:15 UTC 24033969 https://www.gopetition.com/signature/locate/24033942?utm_medium=rss Fri, 12 Feb 2021 05:14:02 UTC 24033942 https://www.gopetition.com/signature/locate/24033575?utm_medium=rss Fri, 12 Feb 2021 10:58:45 UTC 24033575 https://www.gopetition.com/signature/locate/24033498?utm_medium=rss Fri, 12 Feb 2021 08:26:59 UTC 24033498 https://www.gopetition.com/signature/locate/24030068?utm_medium=rss Why wouldyou take this down without providing an altenative. Such malice, cruel, despicable.

]]> Wed, 10 Feb 2021 07:39:56 UTC 24030068 https://www.gopetition.com/signature/locate/24027805?utm_medium=rss Tue, 9 Feb 2021 06:05:48 UTC 24027805 https://www.gopetition.com/signature/locate/24027556?utm_medium=rss Tue, 9 Feb 2021 01:59:12 UTC 24027556 https://www.gopetition.com/signature/locate/24027451?utm_medium=rss Tue, 9 Feb 2021 11:58:41 UTC 24027451 https://www.gopetition.com/signature/locate/24027383?utm_medium=rss Tue, 9 Feb 2021 10:21:53 UTC 24027383 https://www.gopetition.com/signature/locate/24027247?utm_medium=rss Tue, 9 Feb 2021 07:23:07 UTC 24027247 https://www.gopetition.com/signature/locate/24026335?utm_medium=rss Mon, 8 Feb 2021 08:23:32 UTC 24026335 https://www.gopetition.com/signature/locate/24026215?utm_medium=rss Mon, 8 Feb 2021 06:57:58 UTC 24026215 https://www.gopetition.com/signature/locate/24026039?utm_medium=rss I was diagnosed at the age of 46 and had to go private because 8 years ago very few GPs new what to look for with EDS. So many years of my life passed me by as well as lost confidence. Keep this toolkit - it is the very least that should be done but so much more is required. Can't tell you how many GPs have asked me to explain to them what EDS is over the years,

]]> Mon, 8 Feb 2021 05:11:57 UTC 24026039 https://www.gopetition.com/signature/locate/24023808?utm_medium=rss Sun, 7 Feb 2021 02:59:17 UTC 24023808 https://www.gopetition.com/signature/locate/24023711?utm_medium=rss Sun, 7 Feb 2021 02:25:47 UTC 24023711 https://www.gopetition.com/signature/locate/24023397?utm_medium=rss Sun, 7 Feb 2021 08:57:20 UTC 24023397 https://www.gopetition.com/signature/locate/24022963?utm_medium=rss This is one of the biggest scientific collection of information for EDSers, we need this!

]]> Sun, 7 Feb 2021 12:01:52 UTC 24022963 https://www.gopetition.com/signature/locate/24022885?utm_medium=rss Sat, 6 Feb 2021 10:55:15 UTC 24022885 https://www.gopetition.com/signature/locate/24021306?utm_medium=rss The toolkit has helped hundreds of patients access appropriate help by giving their GP up to date and accurate information hosted from a trusted source, the RCGP.
It represents a lot of work and is currently the only resource for primary care and EDS.
It was one of the most downloaded toolkits in the month it was originally published.
For a group of patients who are frequently failed by healthcare services this is an extremely valuable and essential resource.

]]> Fri, 5 Feb 2021 05:44:19 UTC 24021306 https://www.gopetition.com/signature/locate/24021172?utm_medium=rss Fri, 5 Feb 2021 03:45:56 UTC 24021172 https://www.gopetition.com/signature/locate/24021063?utm_medium=rss Fri, 5 Feb 2021 02:17:29 UTC 24021063 https://www.gopetition.com/signature/locate/24021027?utm_medium=rss This toolkit is desperately needed - it took 56 years of misdiagnosis (including Munchausen Syndrome) before my GP accessed this toolkit - after being told of it's existence by my knee surgeon. My surgeon was the one who diagnosed me, and my then GP agreed with the diagnoses after using this toolkit.

]]> Fri, 5 Feb 2021 01:47:45 UTC 24021027 https://www.gopetition.com/signature/locate/24020842?utm_medium=rss Fri, 5 Feb 2021 11:27:27 UTC 24020842 https://www.gopetition.com/signature/locate/24020596?utm_medium=rss Fri, 5 Feb 2021 08:06:49 UTC 24020596 https://www.gopetition.com/signature/locate/24020493?utm_medium=rss It is extremely important that first line doctors (GPs) are well trained in EDS, so they have got a good understanding about the complexity.

]]> Fri, 5 Feb 2021 06:14:41 UTC 24020493 https://www.gopetition.com/signature/locate/24019941?utm_medium=rss Thu, 4 Feb 2021 10:17:38 UTC 24019941 https://www.gopetition.com/signature/locate/24019916?utm_medium=rss As a sufferer my Dr's need all the help and info they can't get.

]]> Thu, 4 Feb 2021 09:53:37 UTC 24019916 https://www.gopetition.com/signature/locate/24019903?utm_medium=rss Useful resource for condition that isn’t always well understood

]]> Thu, 4 Feb 2021 09:26:28 UTC 24019903 https://www.gopetition.com/signature/locate/24019898?utm_medium=rss Thu, 4 Feb 2021 09:22:52 UTC 24019898 https://www.gopetition.com/signature/locate/24019570?utm_medium=rss Thu, 4 Feb 2021 05:54:35 UTC 24019570 https://www.gopetition.com/signature/locate/24019418?utm_medium=rss Thu, 4 Feb 2021 02:50:33 UTC 24019418 https://www.gopetition.com/signature/locate/24019252?utm_medium=rss This is an important resource for anyone suffering from EDS, and also for anyone who is trying to understand it: that includes a lot of people who simply need to know how to relate to one suffering from it, as those afflicted are so often treated as though they were pretending their difficulties and making them up. It is vital resource for anyone who has to deal with sufferers and the public needs to be far better served and informed about this affliction.

]]> Thu, 4 Feb 2021 11:58:14 UTC 24019252 https://www.gopetition.com/signature/locate/24018811?utm_medium=rss Thu, 4 Feb 2021 06:10:05 UTC 24018811 https://www.gopetition.com/signature/locate/24018494?utm_medium=rss As an EDS patient, this decision will have huge impacts on the health, well being and quality of life of myself and all other EDS patients. It's taken years to get this far, in medical awareness. Please retract this dangerous, life crushing decision and give EDS the prominence it deserves.

]]> Wed, 3 Feb 2021 11:49:02 UTC 24018494 https://www.gopetition.com/signature/locate/24018484?utm_medium=rss Wed, 3 Feb 2021 11:34:48 UTC 24018484 https://www.gopetition.com/signature/locate/24018398?utm_medium=rss Wed, 3 Feb 2021 09:58:17 UTC 24018398 https://www.gopetition.com/signature/locate/24018382?utm_medium=rss Wed, 3 Feb 2021 09:43:39 UTC 24018382 https://www.gopetition.com/signature/locate/24018075?utm_medium=rss Wed, 3 Feb 2021 05:57:47 UTC 24018075 https://www.gopetition.com/signature/locate/24017997?utm_medium=rss Wed, 3 Feb 2021 05:08:01 UTC 24017997 https://www.gopetition.com/signature/locate/24017989?utm_medium=rss Wed, 3 Feb 2021 05:02:39 UTC 24017989 https://www.gopetition.com/signature/locate/24017962?utm_medium=rss Wed, 3 Feb 2021 04:42:33 UTC 24017962 https://www.gopetition.com/signature/locate/24017927?utm_medium=rss Wed, 3 Feb 2021 04:21:14 UTC 24017927 https://www.gopetition.com/signature/locate/24017847?utm_medium=rss Wed, 3 Feb 2021 03:23:13 UTC 24017847 https://www.gopetition.com/signature/locate/24017428?utm_medium=rss Wed, 3 Feb 2021 11:13:24 UTC 24017428