http://www.gopetition.com/signatures/make-may-ehlers-danlos-syndrome-awareness-month.html Online petition signatures en-us Tue, 21 Apr 2026 06:18 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://www.gopetition.com/signature/locate/17240226?utm_medium=rss Thu, 1 May 2014 11:16:14 UTC 17240226 https://www.gopetition.com/signature/locate/16463214?utm_medium=rss Sun, 22 Dec 2013 07:45:49 UTC 16463214 https://www.gopetition.com/signature/locate/15265510?utm_medium=rss Fri, 17 May 2013 04:31:25 UTC 15265510 https://www.gopetition.com/signature/locate/15181101?utm_medium=rss Sun, 5 May 2013 07:46:07 UTC 15181101 https://www.gopetition.com/signature/locate/15159979?utm_medium=rss Wed, 1 May 2013 08:49:03 UTC 15159979 https://www.gopetition.com/signature/locate/15056578?utm_medium=rss Sat, 13 Apr 2013 10:41:01 UTC 15056578 https://www.gopetition.com/signature/locate/15048532?utm_medium=rss This syndrome has been very debilitating to me as I get older. It is very hard to find doctors whom I don't have to teach about my illness instead of getting the illness treated. I don't want my daughter and brand new grand daughter to struggle through life as I have had to get the care they need.

]]> Thu, 11 Apr 2013 08:45:09 UTC 15048532 https://www.gopetition.com/signature/locate/14885419?utm_medium=rss Wed, 13 Mar 2013 09:21:47 UTC 14885419 https://www.gopetition.com/signature/locate/14854586?utm_medium=rss Fri, 8 Mar 2013 07:11:44 UTC 14854586 https://www.gopetition.com/signature/locate/14795778?utm_medium=rss Sat, 2 Mar 2013 04:47:26 UTC 14795778 https://www.gopetition.com/signature/locate/14611695?utm_medium=rss Sat, 2 Feb 2013 10:49:34 UTC 14611695 https://www.gopetition.com/signature/locate/14261050?utm_medium=rss As a Licensed Clinical Professional Counselor , Licensed Marriage and Family Therapist (Illinois) and mother of a 29 year old daughter struggling with Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome I am asking that research and medical support, as well as, more educational awareness among physicians and health care professionals be implemented. I believe that making May Ehlers-Danlos month is a helpful beginning in this process.l Thank-you for your time and attention to this critical matter, since it is not even currently considered a disability, as debilitating as it can be!! Sincerely, Cathalene Silver, Ed.S., LCPC, LMFT

]]> Wed, 19 Dec 2012 07:58:35 UTC 14261050 https://www.gopetition.com/signature/locate/13532376?utm_medium=rss Mon, 13 Aug 2012 12:43:44 UTC 13532376 https://www.gopetition.com/signature/locate/13296478?utm_medium=rss Tue, 10 Jul 2012 08:15:02 UTC 13296478 https://www.gopetition.com/signature/locate/12844188?utm_medium=rss I have this disease and think we need more researches walks and just raise awareness to everyone about this

]]> Thu, 17 May 2012 12:12:40 UTC 12844188 https://www.gopetition.com/signature/locate/12711048?utm_medium=rss I am 35 and have Ehlers Danlos Syndrome. I struggled with symptoms for years and was only diagnosed 2 1/2 years ago. Still this disease is so unknown that I have to educate most of the doctors I see, taking them in copies of EDNF brochures and and my genetic report so they can understand my disease and symptoms of it. We need help with spreading the knowledge desperately. Thank you.

]]> Tue, 8 May 2012 02:32:07 UTC 12711048 https://www.gopetition.com/signature/locate/12684947?utm_medium=rss Fri, 4 May 2012 09:45:16 UTC 12684947 https://www.gopetition.com/signature/locate/12634822?utm_medium=rss Thu, 26 Apr 2012 08:25:09 UTC 12634822 https://www.gopetition.com/signature/locate/12552789?utm_medium=rss Fri, 13 Apr 2012 03:59:52 UTC 12552789 https://www.gopetition.com/signature/locate/12552598?utm_medium=rss I am very close to this disease my daughter suffers from it and the pain she goes through is relenting

]]> Fri, 13 Apr 2012 03:31:55 UTC 12552598 https://www.gopetition.com/signature/locate/12551331?utm_medium=rss Fri, 13 Apr 2012 11:34:38 UTC 12551331 https://www.gopetition.com/signature/locate/12517254?utm_medium=rss Sat, 7 Apr 2012 01:49:01 UTC 12517254 https://www.gopetition.com/signature/locate/12486316?utm_medium=rss Whereas, Ehlers-Danlos Syndrome is frequently misdiagnosed or undiagnosed for decades, sometimes generations, resulting in greater discomfort and disability for individuals and offspring; improved knowledge of all types allow earlier and more effective management of Ehlers-Danlos Syndrome increasing hope of a better quality of life, increased participation in society, reduced disability, and pain.

]]> Mon, 2 Apr 2012 11:52:05 UTC 12486316 https://www.gopetition.com/signature/locate/12484025?utm_medium=rss Feeling lost, alone, and with my symptoms worsening every day; very afraid. Please help us to find peace and the hope that one day we may wake up and feel 100% ourselves. This "invisible" disease, this "dark passenger" turns every day into mountain. Please help us get to the top! :-)

]]> Mon, 2 Apr 2012 02:14:32 UTC 12484025 https://www.gopetition.com/signature/locate/12456509?utm_medium=rss AWARENESS!

]]> Wed, 28 Mar 2012 04:59:26 UTC 12456509 https://www.gopetition.com/signature/locate/12143876?utm_medium=rss Sat, 4 Feb 2012 02:38:44 UTC 12143876 https://www.gopetition.com/signature/locate/12012677?utm_medium=rss Tue, 17 Jan 2012 01:18:10 UTC 12012677 https://www.gopetition.com/signature/locate/11519945?utm_medium=rss im 14 now,and was diagnosed when I was 8 with hyperflexible type.This disease sucks.

]]> Tue, 15 Nov 2011 03:28:51 UTC 11519945 https://www.gopetition.com/signature/locate/11502216?utm_medium=rss Sat, 12 Nov 2011 12:07:38 UTC 11502216 https://www.gopetition.com/signature/locate/11440614?utm_medium=rss Thu, 3 Nov 2011 07:17:59 UTC 11440614 https://www.gopetition.com/signature/locate/11425769?utm_medium=rss Mon, 31 Oct 2011 03:33:29 UTC 11425769 https://www.gopetition.com/signature/locate/11424991?utm_medium=rss I have EDS and its appauling how many DOCTORS have no idea what it is let alone the general public...we need awareness and funds too

]]> Mon, 31 Oct 2011 12:07:30 UTC 11424991 https://www.gopetition.com/signature/locate/11424309?utm_medium=rss Mon, 31 Oct 2011 08:35:34 UTC 11424309 https://www.gopetition.com/signature/locate/11422883?utm_medium=rss Sun, 30 Oct 2011 09:06:57 UTC 11422883 https://www.gopetition.com/signature/locate/11422849?utm_medium=rss Sun, 30 Oct 2011 08:49:42 UTC 11422849 https://www.gopetition.com/signature/locate/11422576?utm_medium=rss Sun, 30 Oct 2011 06:37:10 UTC 11422576 https://www.gopetition.com/signature/locate/11422258?utm_medium=rss Sun, 30 Oct 2011 05:01:55 UTC 11422258 https://www.gopetition.com/signature/locate/11422176?utm_medium=rss Sun, 30 Oct 2011 04:34:52 UTC 11422176 https://www.gopetition.com/signature/locate/11422155?utm_medium=rss Sun, 30 Oct 2011 04:31:02 UTC 11422155 https://www.gopetition.com/signature/locate/11422126?utm_medium=rss Sun, 30 Oct 2011 04:23:43 UTC 11422126 https://www.gopetition.com/signature/locate/11422120?utm_medium=rss Sun, 30 Oct 2011 04:21:51 UTC 11422120 https://www.gopetition.com/signature/locate/11422106?utm_medium=rss Sun, 30 Oct 2011 04:18:42 UTC 11422106 https://www.gopetition.com/signature/locate/11421516?utm_medium=rss Sun, 30 Oct 2011 01:33:28 UTC 11421516 https://www.gopetition.com/signature/locate/11392466?utm_medium=rss Mon, 24 Oct 2011 02:49:51 UTC 11392466 https://www.gopetition.com/signature/locate/11389523?utm_medium=rss A very good friend of mine has this and I think people should be aware of how serious this is

]]> Mon, 24 Oct 2011 06:51:45 UTC 11389523 https://www.gopetition.com/signature/locate/11387836?utm_medium=rss Mon, 24 Oct 2011 12:29:31 UTC 11387836 https://www.gopetition.com/signature/locate/11360423?utm_medium=rss Wed, 19 Oct 2011 08:28:21 UTC 11360423 https://www.gopetition.com/signature/locate/11360407?utm_medium=rss Wed, 19 Oct 2011 08:26:37 UTC 11360407 https://www.gopetition.com/signature/locate/11346132?utm_medium=rss I want so much for people to be educated and aware of EDS. I was in the hospital recently because of EDS and none of the nurses had ever heard of EDS. My own Dr. had to study up on this before performing surgery on me! We need to have research done to find ways for better treatment: not just put bandaids when something falls apart!!

]]> Tue, 18 Oct 2011 12:28:51 UTC 11346132 https://www.gopetition.com/signature/locate/11234748?utm_medium=rss Thu, 29 Sep 2011 07:37:49 UTC 11234748 https://www.gopetition.com/signature/locate/11234681?utm_medium=rss Thu, 29 Sep 2011 07:11:34 UTC 11234681 https://www.gopetition.com/signature/locate/11229619?utm_medium=rss Wed, 28 Sep 2011 08:20:16 UTC 11229619 https://www.gopetition.com/signature/locate/11229605?utm_medium=rss Wed, 28 Sep 2011 08:16:48 UTC 11229605 https://www.gopetition.com/signature/locate/11229388?utm_medium=rss Wed, 28 Sep 2011 07:27:39 UTC 11229388 https://www.gopetition.com/signature/locate/11228138?utm_medium=rss My daughter and two grandchildren have EDS. My daughter was diagnosed with "hyper elasticity" at approximately 10 years of age. Two of her 3 children have EDS and were not told of EDS until age 3. Further research would be most helpful for earlly detection.

]]> Wed, 28 Sep 2011 03:27:07 UTC 11228138 https://www.gopetition.com/signature/locate/11215005?utm_medium=rss Mon, 26 Sep 2011 12:59:06 UTC 11215005 https://www.gopetition.com/signature/locate/11214717?utm_medium=rss Sun, 25 Sep 2011 09:03:41 UTC 11214717 https://www.gopetition.com/signature/locate/11180743?utm_medium=rss Sun, 18 Sep 2011 01:15:35 UTC 11180743 https://www.gopetition.com/signature/locate/11180123?utm_medium=rss I'm tired of going to doctors and having them say "you have...WHAT?". It's time to get the info out there to the world. Then maybe we will not be ignored.

]]> Sun, 18 Sep 2011 10:32:44 UTC 11180123 https://www.gopetition.com/signature/locate/11177418?utm_medium=rss My wife and daughter have ed

]]> Sat, 17 Sep 2011 03:42:01 UTC 11177418 https://www.gopetition.com/signature/locate/11177374?utm_medium=rss If diabetes, lupus, breast cancer can all have months why can't Ehlers Danlos Syndrome have an awareness month?

]]> Sat, 17 Sep 2011 03:28:29 UTC 11177374 https://www.gopetition.com/signature/locate/11175326?utm_medium=rss Not only is it difficult to live with this disorder, but the lack of care and knowledge within the medical community makes it all the more challenging to get proper care and treatment.

]]> Sat, 17 Sep 2011 03:35:02 UTC 11175326 https://www.gopetition.com/signature/locate/11175312?utm_medium=rss Ehles Danlos is a very hard disease to deal with and causes many other coexisting conditions. Ehlers Danlos is vey unnwn t many including doctos and other medcal professionas, we need an awareness month to change that!

]]> Sat, 17 Sep 2011 03:29:44 UTC 11175312 https://www.gopetition.com/signature/locate/11174541?utm_medium=rss I have EDS and can say it is not as rare as you would assume. If we had more awareness then more people would have early diagnosis and not suffer long term damage that can be prevented if they only understand what is going on. My diagnosis saved my life. Help us save others.

]]> Fri, 16 Sep 2011 08:57:50 UTC 11174541 https://www.gopetition.com/signature/locate/11174236?utm_medium=rss Fri, 16 Sep 2011 06:52:43 UTC 11174236 https://www.gopetition.com/signature/locate/11174223?utm_medium=rss Fri, 16 Sep 2011 06:48:26 UTC 11174223 https://www.gopetition.com/signature/locate/11168266?utm_medium=rss Thu, 15 Sep 2011 10:44:19 UTC 11168266 https://www.gopetition.com/signature/locate/11166816?utm_medium=rss Thu, 15 Sep 2011 02:12:58 UTC 11166816 https://www.gopetition.com/signature/locate/11166676?utm_medium=rss Thu, 15 Sep 2011 01:41:43 UTC 11166676 https://www.gopetition.com/signature/locate/11165514?utm_medium=rss Thu, 15 Sep 2011 09:11:43 UTC 11165514 https://www.gopetition.com/signature/locate/11128170?utm_medium=rss i am 46 yrs old recently been told that i have elher danlos sydrom need doctors to understand this disorder. they always make me feel like a freak show and/or tell me they dont know how or what to do for me i ve had 3 surgerys on my shoulders..i live in pain everyday of my life . i need help finding a specialist who is willing and knowledgable to help me.

]]> Tue, 6 Sep 2011 11:53:36 UTC 11128170 https://www.gopetition.com/signature/locate/10878007?utm_medium=rss I have Ehlers-Danlos syndrome and its so tiring explaining my condition to EVERYONE I meet. I feel like there needs to be more understanding about this syndrome in the community.

]]> Tue, 19 Jul 2011 02:26:15 UTC 10878007 https://www.gopetition.com/signature/locate/10847127?utm_medium=rss Wed, 13 Jul 2011 01:39:16 UTC 10847127 https://www.gopetition.com/signature/locate/10568744?utm_medium=rss Sun, 29 May 2011 12:39:50 UTC 10568744 https://www.gopetition.com/signature/locate/10538453?utm_medium=rss Tue, 24 May 2011 08:37:54 UTC 10538453 https://www.gopetition.com/signature/locate/10455186?utm_medium=rss Sat, 14 May 2011 08:28:53 UTC 10455186 https://www.gopetition.com/signature/locate/10424261?utm_medium=rss Mon, 9 May 2011 03:36:18 UTC 10424261 https://www.gopetition.com/signature/locate/10398491?utm_medium=rss Thu, 5 May 2011 08:01:43 UTC 10398491 https://www.gopetition.com/signature/locate/10387668?utm_medium=rss Wed, 4 May 2011 03:34:16 UTC 10387668 https://www.gopetition.com/signature/locate/10380074?utm_medium=rss My sister passed away from complications with Ehlers Danlos Syndrome Type IV and three of my nieces have been diagnosed with this. Please make May Ehlers Danlos Syndrome Month!!!!

]]> Tue, 3 May 2011 10:36:40 UTC 10380074 https://www.gopetition.com/signature/locate/10379692?utm_medium=rss Tue, 3 May 2011 09:27:07 UTC 10379692 https://www.gopetition.com/signature/locate/10379033?utm_medium=rss Tue, 3 May 2011 07:41:37 UTC 10379033 https://www.gopetition.com/signature/locate/10378928?utm_medium=rss Tue, 3 May 2011 07:23:40 UTC 10378928 https://www.gopetition.com/signature/locate/10378885?utm_medium=rss Tue, 3 May 2011 07:15:51 UTC 10378885 https://www.gopetition.com/signature/locate/10378770?utm_medium=rss Tue, 3 May 2011 06:56:58 UTC 10378770 https://www.gopetition.com/signature/locate/10378345?utm_medium=rss Tue, 3 May 2011 05:46:06 UTC 10378345 https://www.gopetition.com/signature/locate/10367459?utm_medium=rss Mon, 2 May 2011 06:58:48 UTC 10367459 https://www.gopetition.com/signature/locate/10367450?utm_medium=rss Mon, 2 May 2011 06:57:28 UTC 10367450 https://www.gopetition.com/signature/locate/10367150?utm_medium=rss Mon, 2 May 2011 06:20:04 UTC 10367150 https://www.gopetition.com/signature/locate/10366177?utm_medium=rss Mon, 2 May 2011 05:00:37 UTC 10366177 https://www.gopetition.com/signature/locate/10366139?utm_medium=rss Mon, 2 May 2011 04:58:57 UTC 10366139 https://www.gopetition.com/signature/locate/10365872?utm_medium=rss Mon, 2 May 2011 04:21:01 UTC 10365872 https://www.gopetition.com/signature/locate/10358917?utm_medium=rss Sun, 1 May 2011 07:49:00 UTC 10358917 https://www.gopetition.com/signature/locate/10357108?utm_medium=rss I have EDS Type 3, which impacts every aspect of my life and the lives of those surrounding me. Awareness is the first step in finding a cure!

]]> Sun, 1 May 2011 02:27:48 UTC 10357108 https://www.gopetition.com/signature/locate/10357096?utm_medium=rss Sun, 1 May 2011 02:24:02 UTC 10357096 https://www.gopetition.com/signature/locate/10357084?utm_medium=rss Knowledge is always powerful!

]]> Sun, 1 May 2011 02:22:19 UTC 10357084 https://www.gopetition.com/signature/locate/10356980?utm_medium=rss Sun, 1 May 2011 02:00:47 UTC 10356980 https://www.gopetition.com/signature/locate/10356918?utm_medium=rss I am 26 years old and I have Ehlers-Danlos Syndrome, type 3, which means I have joint hyper-mobility. I endure joint pain as bad as an 80 year old. I suffer from several bone problems like scoliosis, degenerating cervical discs, and TMJ. Please make Ohio one of the states that actually support and recognize EDS Awareness in May!

]]> Sun, 1 May 2011 01:49:39 UTC 10356918 https://www.gopetition.com/signature/locate/10353365?utm_medium=rss Sat, 30 Apr 2011 11:10:17 UTC 10353365 https://www.gopetition.com/signature/locate/10353348?utm_medium=rss Sat, 30 Apr 2011 11:03:04 UTC 10353348