Petition for a PAUSE to NICE and NHS England decision to introduce QALYS into the appraisal of highly specialised technologies affecting reimbursement of drugs for ultra-rare diseases in England Petition: Signature List Feed http://www.gopetition.com/signatures/petition-for-a-pause-to-nice-and-nhs-england-decision-to-introduce-qalys-into-the-appraisal-of-highly-specialised-technologies-affecting-reimbursement-of-drugs-for-ultra-rare-diseases-in-england.html Online petition signatures en-us Sat, 18 Apr 2026 07:03 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition Anonymous [Signature #4701] https://www.gopetition.com/signature/locate/24403504?utm_medium=rss Wed, 19 Apr 2023 11:42:43 UTC 24403504 Peter Jones [Signature #4700] https://www.gopetition.com/signature/locate/24240265?utm_medium=rss Wed, 23 Mar 2022 05:17:16 UTC 24240265 Sophie Ali [Signature #4699] https://www.gopetition.com/signature/locate/23255797?utm_medium=rss Fri, 27 Sep 2019 01:05:28 UTC 23255797 jimmy johnson [Signature #4698] https://www.gopetition.com/signature/locate/22109187?utm_medium=rss Fri, 30 Mar 2018 08:16:33 UTC 22109187 Anonymous [Signature #4697] https://www.gopetition.com/signature/locate/21922873?utm_medium=rss Mon, 4 Dec 2017 01:18:24 UTC 21922873 Rucksana Hussain [Signature #4696] https://www.gopetition.com/signature/locate/21718729?utm_medium=rss Sun, 15 Oct 2017 10:33:06 UTC 21718729 Dr Marcelo Braganceiro [Signature #4695] https://www.gopetition.com/signature/locate/21591670?utm_medium=rss If we don’t stop these changes coming into force from 1 April 2017, we will see the introduction of a £100,000 quality-adjusted life year (QALY) threshold for medicines evaluated via NICE’s Highly Specialised Technologies (HST) programme, which assesses treatments for ultra-rare diseases. This threshold will effectively stop the flow of new medicines reaching patients with ultra-rare diseases.
Dr Marcelo Braganceiro da Silva

]]> Sun, 20 Aug 2017 12:23:24 UTC 21591670 Anonymous [Signature #4694] https://www.gopetition.com/signature/locate/21567513?utm_medium=rss Wed, 9 Aug 2017 09:47:15 UTC 21567513 Sarah Medd [Signature #4693] https://www.gopetition.com/signature/locate/21548238?utm_medium=rss mucolipidosis

]]> Tue, 1 Aug 2017 06:32:17 UTC 21548238 Anonymous [Signature #4692] https://www.gopetition.com/signature/locate/21528038?utm_medium=rss Mon, 24 Jul 2017 06:22:32 UTC 21528038 Wardah Asif [Signature #4691] https://www.gopetition.com/signature/locate/21466716?utm_medium=rss Thu, 29 Jun 2017 04:13:08 UTC 21466716 Andrew Pettit [Signature #4690] https://www.gopetition.com/signature/locate/21435855?utm_medium=rss Rationing health care is wrong at any level. Costs are only this high due to profits demanded by the pharmaceutical companies' shareholders

]]> Fri, 16 Jun 2017 07:19:34 UTC 21435855 Anonymous [Signature #4689] https://www.gopetition.com/signature/locate/21424904?utm_medium=rss Wed, 14 Jun 2017 10:02:44 UTC 21424904 Anonymous [Signature #4688] https://www.gopetition.com/signature/locate/21423265?utm_medium=rss Wed, 14 Jun 2017 02:36:48 UTC 21423265 Clare Hathaway [Signature #4687] https://www.gopetition.com/signature/locate/21413201?utm_medium=rss Tue, 13 Jun 2017 09:54:29 UTC 21413201 ian mac donald [Signature #4686] https://www.gopetition.com/signature/locate/21413096?utm_medium=rss get rid of the profit before people NICE (Nasty Institute of Clinical Exercution)
And stop the endless filling the pockets of ruling class scumbags

]]> Tue, 13 Jun 2017 09:49:52 UTC 21413096 Stephen Brown [Signature #4685] https://www.gopetition.com/signature/locate/21411382?utm_medium=rss Tue, 13 Jun 2017 07:17:50 UTC 21411382 Brett Smith [Signature #4684] https://www.gopetition.com/signature/locate/21410181?utm_medium=rss Tue, 13 Jun 2017 01:23:02 UTC 21410181 Pedro Seromenho [Signature #4683] https://www.gopetition.com/signature/locate/21394831?utm_medium=rss Wed, 7 Jun 2017 09:02:23 UTC 21394831 Valerie Phillips Phillips p [Signature #4682] https://www.gopetition.com/signature/locate/21356654?utm_medium=rss Wed, 24 May 2017 06:36:35 UTC 21356654 Anonymous [Signature #4681] https://www.gopetition.com/signature/locate/21350506?utm_medium=rss Mon, 22 May 2017 11:32:08 UTC 21350506 Angela Brown [Signature #4680] https://www.gopetition.com/signature/locate/21350121?utm_medium=rss Mon, 22 May 2017 08:36:57 UTC 21350121 Lisa Abbott [Signature #4679] https://www.gopetition.com/signature/locate/21349013?utm_medium=rss Sun, 21 May 2017 09:58:03 UTC 21349013 Joanne Stacey [Signature #4678] https://www.gopetition.com/signature/locate/21348194?utm_medium=rss Sun, 21 May 2017 05:04:34 UTC 21348194 Susan Russell [Signature #4677] https://www.gopetition.com/signature/locate/21347277?utm_medium=rss Sun, 21 May 2017 11:52:28 UTC 21347277 Gillian Sylvester [Signature #4676] https://www.gopetition.com/signature/locate/21347146?utm_medium=rss Sun, 21 May 2017 11:08:32 UTC 21347146 J Evans [Signature #4675] https://www.gopetition.com/signature/locate/21346632?utm_medium=rss Sun, 21 May 2017 07:50:26 UTC 21346632 Gavin Goddard [Signature #4674] https://www.gopetition.com/signature/locate/21346533?utm_medium=rss Sun, 21 May 2017 07:11:52 UTC 21346533 Tracey Maw [Signature #4673] https://www.gopetition.com/signature/locate/21345696?utm_medium=rss Sat, 20 May 2017 10:25:24 UTC 21345696 Luke Jenkinson [Signature #4672] https://www.gopetition.com/signature/locate/21345594?utm_medium=rss Sat, 20 May 2017 09:40:35 UTC 21345594 James Jenkinson [Signature #4671] https://www.gopetition.com/signature/locate/21345503?utm_medium=rss Sat, 20 May 2017 09:00:41 UTC 21345503 Leah Booker [Signature #4670] https://www.gopetition.com/signature/locate/21345083?utm_medium=rss Sat, 20 May 2017 05:47:53 UTC 21345083 Andrew Drummond [Signature #4669] https://www.gopetition.com/signature/locate/21344783?utm_medium=rss Sat, 20 May 2017 03:39:58 UTC 21344783 Julie Mccloskey [Signature #4668] https://www.gopetition.com/signature/locate/21344699?utm_medium=rss Sat, 20 May 2017 03:04:27 UTC 21344699 Sharron Kissack [Signature #4667] https://www.gopetition.com/signature/locate/21344257?utm_medium=rss Sat, 20 May 2017 11:58:46 UTC 21344257 David Singh [Signature #4666] https://www.gopetition.com/signature/locate/21344180?utm_medium=rss Sat, 20 May 2017 11:28:36 UTC 21344180 mary longley [Signature #4665] https://www.gopetition.com/signature/locate/21344005?utm_medium=rss you should NOT have to beg for any medication especially a child

]]> Sat, 20 May 2017 10:15:19 UTC 21344005 Lisa Twigg [Signature #4664] https://www.gopetition.com/signature/locate/21343983?utm_medium=rss Sat, 20 May 2017 10:08:03 UTC 21343983 Carly Whyman [Signature #4663] https://www.gopetition.com/signature/locate/21343867?utm_medium=rss Sat, 20 May 2017 09:26:09 UTC 21343867 Samantha Littlewood [Signature #4662] https://www.gopetition.com/signature/locate/21343695?utm_medium=rss Sat, 20 May 2017 08:12:25 UTC 21343695 Andrew Campsill [Signature #4661] https://www.gopetition.com/signature/locate/21343690?utm_medium=rss Sat, 20 May 2017 08:09:09 UTC 21343690 Laura-Jo Gibson [Signature #4660] https://www.gopetition.com/signature/locate/21343643?utm_medium=rss Sat, 20 May 2017 07:41:50 UTC 21343643 Maria Whiteley [Signature #4659] https://www.gopetition.com/signature/locate/21343597?utm_medium=rss Sat, 20 May 2017 07:19:45 UTC 21343597 Donna Coleman [Signature #4658] https://www.gopetition.com/signature/locate/21343581?utm_medium=rss Sat, 20 May 2017 07:07:46 UTC 21343581 Lynne Noble [Signature #4657] https://www.gopetition.com/signature/locate/21343518?utm_medium=rss Sat, 20 May 2017 05:56:37 UTC 21343518 Michelle Barber [Signature #4656] https://www.gopetition.com/signature/locate/21343441?utm_medium=rss Sat, 20 May 2017 04:24:14 UTC 21343441 Anonymous [Signature #4655] https://www.gopetition.com/signature/locate/21343230?utm_medium=rss Fri, 19 May 2017 11:56:55 UTC 21343230 Anonymous [Signature #4654] https://www.gopetition.com/signature/locate/21343185?utm_medium=rss Fri, 19 May 2017 11:28:00 UTC 21343185 Gavin Moody [Signature #4653] https://www.gopetition.com/signature/locate/21343181?utm_medium=rss Fri, 19 May 2017 11:27:17 UTC 21343181 Anonymous [Signature #4652] https://www.gopetition.com/signature/locate/21343174?utm_medium=rss Fri, 19 May 2017 11:21:18 UTC 21343174 Katie Birkwood [Signature #4651] https://www.gopetition.com/signature/locate/21343132?utm_medium=rss Fri, 19 May 2017 11:00:37 UTC 21343132 Nichola Habberjam [Signature #4650] https://www.gopetition.com/signature/locate/21343122?utm_medium=rss Fri, 19 May 2017 10:54:58 UTC 21343122 Sarah Cairns [Signature #4649] https://www.gopetition.com/signature/locate/21343098?utm_medium=rss Fri, 19 May 2017 10:43:25 UTC 21343098 Alissa Ganson [Signature #4648] https://www.gopetition.com/signature/locate/21343094?utm_medium=rss Fri, 19 May 2017 10:40:35 UTC 21343094 Rachael Thorley [Signature #4647] https://www.gopetition.com/signature/locate/21343075?utm_medium=rss Fri, 19 May 2017 10:35:11 UTC 21343075 Wayne Rutledge [Signature #4646] https://www.gopetition.com/signature/locate/21343066?utm_medium=rss Fri, 19 May 2017 10:33:07 UTC 21343066 Rachel Elston [Signature #4645] https://www.gopetition.com/signature/locate/21343063?utm_medium=rss Fri, 19 May 2017 10:32:09 UTC 21343063 Piper Smith [Signature #4644] https://www.gopetition.com/signature/locate/21343056?utm_medium=rss Fri, 19 May 2017 10:30:32 UTC 21343056 Amanda Ratcliffe [Signature #4643] https://www.gopetition.com/signature/locate/21343052?utm_medium=rss Please help these small children to have the best chance of life that they can.Its a cruel fate they and their familys have to endure,give them a chance to say they tried everything they could and not just be left with the fear of what tomorrow will bring for them.

]]> Fri, 19 May 2017 10:28:07 UTC 21343052 Lee Starbuck [Signature #4642] https://www.gopetition.com/signature/locate/21343012?utm_medium=rss Fri, 19 May 2017 10:09:23 UTC 21343012 Juris Cerbo [Signature #4641] https://www.gopetition.com/signature/locate/21343007?utm_medium=rss Fri, 19 May 2017 10:07:33 UTC 21343007 Amanda Birks [Signature #4640] https://www.gopetition.com/signature/locate/21342985?utm_medium=rss Fri, 19 May 2017 09:59:35 UTC 21342985 Janice Jackson [Signature #4639] https://www.gopetition.com/signature/locate/21342981?utm_medium=rss Fri, 19 May 2017 09:57:48 UTC 21342981 Steven Batker [Signature #4638] https://www.gopetition.com/signature/locate/21342977?utm_medium=rss Everyone has a right to live human right law

]]> Fri, 19 May 2017 09:56:19 UTC 21342977 Anonymous [Signature #4637] https://www.gopetition.com/signature/locate/21342950?utm_medium=rss Fri, 19 May 2017 09:46:12 UTC 21342950 Rachael Nixon [Signature #4636] https://www.gopetition.com/signature/locate/21342915?utm_medium=rss Fri, 19 May 2017 09:35:19 UTC 21342915 Jemma Hill [Signature #4635] https://www.gopetition.com/signature/locate/21342909?utm_medium=rss Fri, 19 May 2017 09:33:35 UTC 21342909 Julie's Driver [Signature #4634] https://www.gopetition.com/signature/locate/21342889?utm_medium=rss Fri, 19 May 2017 09:27:41 UTC 21342889 kelly gaunt [Signature #4633] https://www.gopetition.com/signature/locate/21342866?utm_medium=rss Fri, 19 May 2017 09:18:12 UTC 21342866 steph hodgkinson [Signature #4632] https://www.gopetition.com/signature/locate/21342863?utm_medium=rss Fri, 19 May 2017 09:16:35 UTC 21342863 Tracy Moss [Signature #4631] https://www.gopetition.com/signature/locate/21342843?utm_medium=rss Priorities are all wrong, why pay for cosmetic but not life saving treatment

]]> Fri, 19 May 2017 09:10:42 UTC 21342843 kerry wiseman [Signature #4630] https://www.gopetition.com/signature/locate/21342831?utm_medium=rss Fri, 19 May 2017 09:07:32 UTC 21342831 Kerry Stratton [Signature #4629] https://www.gopetition.com/signature/locate/21342811?utm_medium=rss Fri, 19 May 2017 08:59:45 UTC 21342811 Abigail Gibbs [Signature #4628] https://www.gopetition.com/signature/locate/21342778?utm_medium=rss Give Harley a chance!

]]> Fri, 19 May 2017 08:48:02 UTC 21342778 Janine Marsden [Signature #4627] https://www.gopetition.com/signature/locate/21342763?utm_medium=rss I'm signing this not only for Wayne but for his lil soldier Harley.... I find it despicable that they have no funds for drugs to help him

Keep strong.... keep fighting x

]]> Fri, 19 May 2017 08:42:29 UTC 21342763 Michelle Wood [Signature #4626] https://www.gopetition.com/signature/locate/21342754?utm_medium=rss Fri, 19 May 2017 08:40:51 UTC 21342754 Paul Williamson [Signature #4625] https://www.gopetition.com/signature/locate/21342743?utm_medium=rss Keep fighting we will win

]]> Fri, 19 May 2017 08:37:27 UTC 21342743 Simon Hawthorne [Signature #4624] https://www.gopetition.com/signature/locate/21342742?utm_medium=rss Fri, 19 May 2017 08:36:42 UTC 21342742 Loretta Kerry [Signature #4623] https://www.gopetition.com/signature/locate/21342741?utm_medium=rss Fri, 19 May 2017 08:36:16 UTC 21342741 Anonymous [Signature #4622] https://www.gopetition.com/signature/locate/21334202?utm_medium=rss Mon, 15 May 2017 05:52:24 UTC 21334202 Anonymous [Signature #4621] https://www.gopetition.com/signature/locate/21333246?utm_medium=rss Mon, 15 May 2017 12:27:01 UTC 21333246 Emma Williams [Signature #4620] https://www.gopetition.com/signature/locate/21331754?utm_medium=rss Sat, 13 May 2017 07:01:22 UTC 21331754 Anonymous [Signature #4619] https://www.gopetition.com/signature/locate/21325262?utm_medium=rss Wed, 10 May 2017 04:42:52 UTC 21325262 Khalid Khan [Signature #4618] https://www.gopetition.com/signature/locate/21323216?utm_medium=rss Tue, 9 May 2017 10:48:07 UTC 21323216 John Clague [Signature #4617] https://www.gopetition.com/signature/locate/21322517?utm_medium=rss Mon, 8 May 2017 11:07:05 UTC 21322517 jane whitehead [Signature #4616] https://www.gopetition.com/signature/locate/21321801?utm_medium=rss Every condition deserves support and resource not matter how many or few suffer from it.

]]> Mon, 8 May 2017 04:35:10 UTC 21321801 Anonymous [Signature #4615] https://www.gopetition.com/signature/locate/21319300?utm_medium=rss Sun, 7 May 2017 11:11:49 UTC 21319300 Angelina Smith [Signature #4614] https://www.gopetition.com/signature/locate/21317069?utm_medium=rss Sat, 6 May 2017 06:04:06 UTC 21317069 Simon Connorton [Signature #4613] https://www.gopetition.com/signature/locate/21316515?utm_medium=rss Fri, 5 May 2017 10:40:12 UTC 21316515 Anonymous [Signature #4612] https://www.gopetition.com/signature/locate/21316346?utm_medium=rss Fri, 5 May 2017 08:45:09 UTC 21316346 Anonymous [Signature #4611] https://www.gopetition.com/signature/locate/21307859?utm_medium=rss Please help this little girl!

]]> Wed, 3 May 2017 01:30:51 UTC 21307859 Rubina Hussain [Signature #4610] https://www.gopetition.com/signature/locate/21300043?utm_medium=rss Tue, 2 May 2017 10:32:42 UTC 21300043 Michael Busby [Signature #4609] https://www.gopetition.com/signature/locate/21295112?utm_medium=rss Sun, 30 Apr 2017 12:49:49 UTC 21295112 Lucy Nevinson [Signature #4608] https://www.gopetition.com/signature/locate/21294236?utm_medium=rss Sat, 29 Apr 2017 01:50:46 UTC 21294236 Anonymous [Signature #4607] https://www.gopetition.com/signature/locate/21292098?utm_medium=rss Let the trial be a thing!

]]> Fri, 28 Apr 2017 03:08:52 UTC 21292098 Anonymous [Signature #4606] https://www.gopetition.com/signature/locate/21289047?utm_medium=rss Wed, 26 Apr 2017 06:32:35 UTC 21289047 Anonymous [Signature #4605] https://www.gopetition.com/signature/locate/21288637?utm_medium=rss Tue, 25 Apr 2017 11:48:02 UTC 21288637 Anonymous [Signature #4604] https://www.gopetition.com/signature/locate/21284929?utm_medium=rss Sun, 23 Apr 2017 12:17:06 UTC 21284929 Peter Myers [Signature #4603] https://www.gopetition.com/signature/locate/21282398?utm_medium=rss Fri, 21 Apr 2017 08:34:05 UTC 21282398 Lili Myers [Signature #4602] https://www.gopetition.com/signature/locate/21282397?utm_medium=rss For the most gorgeous Chloe - we love you.

]]> Fri, 21 Apr 2017 08:32:13 UTC 21282397