http://www.gopetition.com/signatures/treatment-abroad-for-eds-and-rare-conditions.html Online petition signatures en-us Tue, 21 Apr 2026 09:41 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://www.gopetition.com/signature/locate/24535167?utm_medium=rss Medicine cannot go forward without proper treatment and care! EDS is a debilitating condition with debilitating complications. Without EDS specialist facilities available, people suffer. Irish-Americans call for amended policies in Ireland regarding efficient funding, as well as proper facilitation at a local level for Irish citizens to receive life-saving care!

]]> Wed, 17 Sep 2025 12:53:01 UTC 24535167 https://www.gopetition.com/signature/locate/24304977?utm_medium=rss Wed, 15 Jun 2022 02:56:52 UTC 24304977 https://www.gopetition.com/signature/locate/22048851?utm_medium=rss My child's Aunt NIAMH GLYNN has been SUFFERING UNNECESSARILY AND now everyone of her discs are actually bulging out. She's in SEVERE PAIN but can't raise enough funds to go to England

]]> Sun, 18 Feb 2018 10:13:16 UTC 22048851 https://www.gopetition.com/signature/locate/22002891?utm_medium=rss Sun, 21 Jan 2018 09:15:01 UTC 22002891 https://www.gopetition.com/signature/locate/21974623?utm_medium=rss Sun, 7 Jan 2018 12:44:35 UTC 21974623 https://www.gopetition.com/signature/locate/21960919?utm_medium=rss Thu, 28 Dec 2017 05:24:09 UTC 21960919 https://www.gopetition.com/signature/locate/21004988?utm_medium=rss Tue, 31 Jan 2017 12:23:17 UTC 21004988 https://www.gopetition.com/signature/locate/20954456?utm_medium=rss Tue, 20 Dec 2016 05:11:04 UTC 20954456 https://www.gopetition.com/signature/locate/20888834?utm_medium=rss Thu, 17 Nov 2016 05:06:14 UTC 20888834 https://www.gopetition.com/signature/locate/20853048?utm_medium=rss Wed, 2 Nov 2016 05:00:58 UTC 20853048 https://www.gopetition.com/signature/locate/20798126?utm_medium=rss Fri, 14 Oct 2016 09:10:19 UTC 20798126 https://www.gopetition.com/signature/locate/20419553?utm_medium=rss Sun, 25 Sep 2016 07:01:48 UTC 20419553 https://www.gopetition.com/signature/locate/20418633?utm_medium=rss Sun, 25 Sep 2016 05:05:49 UTC 20418633 https://www.gopetition.com/signature/locate/20144231?utm_medium=rss Thu, 28 Jul 2016 08:33:23 UTC 20144231 https://www.gopetition.com/signature/locate/20036684?utm_medium=rss This is a life disabling condition. Not having a treatment centre in Ireland is dictating that thousands of Irish remain bedridden in agony, struggling to eat. Shameful!

]]> Tue, 7 Jun 2016 05:26:42 UTC 20036684 https://www.gopetition.com/signature/locate/20022386?utm_medium=rss In support of Ehlers-Danlos

]]> Mon, 30 May 2016 01:07:16 UTC 20022386 https://www.gopetition.com/signature/locate/20017162?utm_medium=rss Thu, 26 May 2016 05:55:00 UTC 20017162 https://www.gopetition.com/signature/locate/20010970?utm_medium=rss Tue, 24 May 2016 05:19:14 UTC 20010970 https://www.gopetition.com/signature/locate/19995714?utm_medium=rss As a second generation Irish descendant, with dual citizenship, and whose grandmother had EDS, I implore you to provide patients with a means for diagnosis. This genetic disorder can be life threatening at worst and debilitating at best, therefore the sooner an individual knows of their condition, the more proactive they can be towards their own health.

]]> Tue, 17 May 2016 01:13:12 UTC 19995714 https://www.gopetition.com/signature/locate/19994479?utm_medium=rss Tue, 17 May 2016 03:20:52 UTC 19994479 https://www.gopetition.com/signature/locate/19993620?utm_medium=rss Mon, 16 May 2016 05:51:42 UTC 19993620 https://www.gopetition.com/signature/locate/19991768?utm_medium=rss Mon, 16 May 2016 04:02:43 UTC 19991768 https://www.gopetition.com/signature/locate/19990863?utm_medium=rss Sun, 15 May 2016 04:04:40 UTC 19990863 https://www.gopetition.com/signature/locate/19990182?utm_medium=rss Sun, 15 May 2016 08:21:35 UTC 19990182 https://www.gopetition.com/signature/locate/19989773?utm_medium=rss Sun, 15 May 2016 02:49:33 UTC 19989773 https://www.gopetition.com/signature/locate/19989451?utm_medium=rss This absolutely needs to be sorted it's shocking the struggle we have to go through in Ireland to get help

]]> Sat, 14 May 2016 07:43:51 UTC 19989451 https://www.gopetition.com/signature/locate/19989417?utm_medium=rss Sat, 14 May 2016 07:08:42 UTC 19989417 https://www.gopetition.com/signature/locate/19989202?utm_medium=rss Sat, 14 May 2016 04:13:24 UTC 19989202 https://www.gopetition.com/signature/locate/19989104?utm_medium=rss Sat, 14 May 2016 03:12:47 UTC 19989104 https://www.gopetition.com/signature/locate/19989071?utm_medium=rss Sat, 14 May 2016 02:55:52 UTC 19989071 https://www.gopetition.com/signature/locate/19989057?utm_medium=rss Sat, 14 May 2016 02:46:40 UTC 19989057 https://www.gopetition.com/signature/locate/19989027?utm_medium=rss Sat, 14 May 2016 02:23:05 UTC 19989027 https://www.gopetition.com/signature/locate/19989006?utm_medium=rss Sat, 14 May 2016 02:11:10 UTC 19989006 https://www.gopetition.com/signature/locate/19988948?utm_medium=rss Sat, 14 May 2016 01:38:49 UTC 19988948 https://www.gopetition.com/signature/locate/19988939?utm_medium=rss Sat, 14 May 2016 01:33:08 UTC 19988939 https://www.gopetition.com/signature/locate/19988923?utm_medium=rss Sat, 14 May 2016 01:21:28 UTC 19988923 https://www.gopetition.com/signature/locate/19988559?utm_medium=rss Sat, 14 May 2016 10:07:20 UTC 19988559 https://www.gopetition.com/signature/locate/19988339?utm_medium=rss Sat, 14 May 2016 08:34:55 UTC 19988339 https://www.gopetition.com/signature/locate/19988227?utm_medium=rss Sat, 14 May 2016 07:36:06 UTC 19988227 https://www.gopetition.com/signature/locate/19988186?utm_medium=rss Sat, 14 May 2016 07:13:58 UTC 19988186 https://www.gopetition.com/signature/locate/19988031?utm_medium=rss Sat, 14 May 2016 04:43:08 UTC 19988031 https://www.gopetition.com/signature/locate/19988004?utm_medium=rss Sat, 14 May 2016 04:11:48 UTC 19988004 https://www.gopetition.com/signature/locate/19987955?utm_medium=rss Sat, 14 May 2016 03:28:40 UTC 19987955 https://www.gopetition.com/signature/locate/19987827?utm_medium=rss Sat, 14 May 2016 01:35:43 UTC 19987827 https://www.gopetition.com/signature/locate/19987677?utm_medium=rss It is a disgrace that people have to go abroad in the first place to receive appropriate care. It is even worse that they have to then self fund to get there and end up in severe debt. If you had expert doctors here and proper care pathways people would not need to go abroad

]]> Fri, 13 May 2016 11:45:09 UTC 19987677 https://www.gopetition.com/signature/locate/19987350?utm_medium=rss Fri, 13 May 2016 09:17:55 UTC 19987350 https://www.gopetition.com/signature/locate/19987299?utm_medium=rss Fri, 13 May 2016 08:59:35 UTC 19987299 https://www.gopetition.com/signature/locate/19987219?utm_medium=rss Please look after Our young people.Give them the chance of life.

]]> Fri, 13 May 2016 08:35:54 UTC 19987219 https://www.gopetition.com/signature/locate/19987212?utm_medium=rss Fri, 13 May 2016 08:34:02 UTC 19987212 https://www.gopetition.com/signature/locate/19987030?utm_medium=rss Fri, 13 May 2016 07:28:08 UTC 19987030 https://www.gopetition.com/signature/locate/19986816?utm_medium=rss Fri, 13 May 2016 06:27:16 UTC 19986816 https://www.gopetition.com/signature/locate/19986725?utm_medium=rss Living with an illness and going to your local hospital can be challenging for most patients - I can't imagine having to get organized, pack bags, raise needles funds, & then travel in tremendous pain to be medically treated in a different country - this has to stop please make the change that is desperately needed

]]> Fri, 13 May 2016 06:01:20 UTC 19986725 https://www.gopetition.com/signature/locate/19986698?utm_medium=rss Fri, 13 May 2016 05:51:57 UTC 19986698 https://www.gopetition.com/signature/locate/19986602?utm_medium=rss Fri, 13 May 2016 05:25:59 UTC 19986602 https://www.gopetition.com/signature/locate/19986566?utm_medium=rss Fri, 13 May 2016 05:17:55 UTC 19986566 https://www.gopetition.com/signature/locate/19986517?utm_medium=rss Fri, 13 May 2016 04:57:55 UTC 19986517 https://www.gopetition.com/signature/locate/19986456?utm_medium=rss Please support this cause

]]> Fri, 13 May 2016 04:41:43 UTC 19986456 https://www.gopetition.com/signature/locate/19986444?utm_medium=rss Fri, 13 May 2016 04:36:55 UTC 19986444 https://www.gopetition.com/signature/locate/19986423?utm_medium=rss Fri, 13 May 2016 04:30:18 UTC 19986423 https://www.gopetition.com/signature/locate/19970217?utm_medium=rss You may wish to reference the following link:
Ehlers Danlos Syndrome is a condition that is expressed in various combinations of symptoms, many of which significant impact activities of daily living for afflicted individuals. It's various forms have differing incidence in the population, and have differing severity of consequences. However, as defects in the manufacturing of connective tissue is the main problem, it affects many aspects of human physiology. You may wish to visit the following link for cutting edge research information.
http://www.prweb.com/releases/Coulter/EDNF/prweb10728485.htm

]]> Fri, 6 May 2016 01:05:50 UTC 19970217 https://www.gopetition.com/signature/locate/19969386?utm_medium=rss Thu, 5 May 2016 10:28:50 UTC 19969386 https://www.gopetition.com/signature/locate/19968199?utm_medium=rss Wed, 4 May 2016 01:24:11 UTC 19968199 https://www.gopetition.com/signature/locate/19882775?utm_medium=rss Fri, 8 Apr 2016 05:53:33 UTC 19882775 https://www.gopetition.com/signature/locate/19849756?utm_medium=rss Wed, 30 Mar 2016 03:09:30 UTC 19849756 https://www.gopetition.com/signature/locate/19713988?utm_medium=rss I believe it is incredibly important to have assistance with medical conditions, even thise that aren't commonly known or thought of as 'dangerous'. Ehlers Danlos Syndrome needs to be taken into this consideration, and there should definitely be closer facilities made for the people in Ireland to get proper medical attention amd assistance without paying out a ridiculous amount of money.

]]> Sun, 7 Feb 2016 09:59:56 UTC 19713988 https://www.gopetition.com/signature/locate/19557161?utm_medium=rss Mon, 14 Dec 2015 06:03:36 UTC 19557161 https://www.gopetition.com/signature/locate/19519597?utm_medium=rss Wed, 25 Nov 2015 02:53:03 UTC 19519597 https://www.gopetition.com/signature/locate/19443205?utm_medium=rss Sat, 7 Nov 2015 04:59:06 UTC 19443205 https://www.gopetition.com/signature/locate/19383495?utm_medium=rss Mon, 12 Oct 2015 03:36:38 UTC 19383495 https://www.gopetition.com/signature/locate/19350796?utm_medium=rss If you could feel the persistent suffering, your choice on funding would be different. Because you can't see it doesn't mean it doesn't exist.

]]> Tue, 29 Sep 2015 06:02:58 UTC 19350796 https://www.gopetition.com/signature/locate/19293705?utm_medium=rss Mon, 14 Sep 2015 11:01:23 UTC 19293705 https://www.gopetition.com/signature/locate/19282854?utm_medium=rss Sat, 12 Sep 2015 01:33:11 UTC 19282854 https://www.gopetition.com/signature/locate/19255832?utm_medium=rss Fri, 4 Sep 2015 05:46:16 UTC 19255832 https://www.gopetition.com/signature/locate/19219920?utm_medium=rss Sun, 23 Aug 2015 07:40:54 UTC 19219920 https://www.gopetition.com/signature/locate/19186173?utm_medium=rss Wed, 12 Aug 2015 01:53:08 UTC 19186173 https://www.gopetition.com/signature/locate/19179803?utm_medium=rss As a person with this condition, I believe that it is extremely important to be able to find care that is appropriate and hopefully close.

]]> Sun, 9 Aug 2015 03:20:09 UTC 19179803 https://www.gopetition.com/signature/locate/19144841?utm_medium=rss Fri, 31 Jul 2015 05:34:38 UTC 19144841 https://www.gopetition.com/signature/locate/18972958?utm_medium=rss Please help the men, women and children with Ehlers-Danlos Syndrome... My daughter suffered in silence with pain for almost 8 years! She was seven years old when the pain started for her...eight years later she was diagnosed with Ehlers-Danlos Syndrome. Please don't allow another child or adult go through this without the help they need.
Thank you!

]]> Sun, 14 Jun 2015 09:31:10 UTC 18972958 https://www.gopetition.com/signature/locate/18953596?utm_medium=rss Sat, 6 Jun 2015 03:43:59 UTC 18953596 https://www.gopetition.com/signature/locate/18950941?utm_medium=rss Fri, 5 Jun 2015 02:30:35 UTC 18950941 https://www.gopetition.com/signature/locate/18948941?utm_medium=rss Come on, pull your finger out. You are elected into power to look after those who need help

]]> Thu, 4 Jun 2015 09:55:14 UTC 18948941 https://www.gopetition.com/signature/locate/18909534?utm_medium=rss Sun, 24 May 2015 06:12:32 UTC 18909534 https://www.gopetition.com/signature/locate/18909146?utm_medium=rss Sun, 24 May 2015 04:26:51 UTC 18909146 https://www.gopetition.com/signature/locate/18906795?utm_medium=rss Sun, 24 May 2015 01:24:33 UTC 18906795 https://www.gopetition.com/signature/locate/18906782?utm_medium=rss Sun, 24 May 2015 01:02:09 UTC 18906782 https://www.gopetition.com/signature/locate/18906474?utm_medium=rss Sat, 23 May 2015 09:12:50 UTC 18906474 https://www.gopetition.com/signature/locate/18888696?utm_medium=rss Sun, 17 May 2015 12:17:49 UTC 18888696 https://www.gopetition.com/signature/locate/18888689?utm_medium=rss Sun, 17 May 2015 12:13:28 UTC 18888689 https://www.gopetition.com/signature/locate/18871327?utm_medium=rss I support the Ehlers Danlos Syndrome Foundation

]]> Mon, 11 May 2015 03:21:27 UTC 18871327 https://www.gopetition.com/signature/locate/18861940?utm_medium=rss Sat, 9 May 2015 06:51:56 UTC 18861940 https://www.gopetition.com/signature/locate/18856478?utm_medium=rss Hi fellow zebras I'm praying for all of you i know how much you Safire sorry for the spelling I have a tumor on my brain have had 35 strokes so to all my brother and sisters zebras I love you and Jesus loves you to. Your brother Donnie Moyer

]]> Wed, 6 May 2015 11:47:11 UTC 18856478 https://www.gopetition.com/signature/locate/18834871?utm_medium=rss Those with EDS requires a special treatment plan or risk doing more damage to the affected joints.

]]> Thu, 30 Apr 2015 04:12:10 UTC 18834871 https://www.gopetition.com/signature/locate/18808277?utm_medium=rss Sat, 25 Apr 2015 08:45:08 UTC 18808277 https://www.gopetition.com/signature/locate/18761378?utm_medium=rss My girlfriend beautiful beyond compare has EDF and I admire her for well she deals with this difficult condition. It would have helped her and many others if it was diagnosed earlier and more recognised.

]]> Wed, 15 Apr 2015 08:40:36 UTC 18761378 https://www.gopetition.com/signature/locate/18760342?utm_medium=rss I have Ehlers Danlos Syndrome Hypermobility Type and just read that the Irish NHS system is even more abysmal than the English system. Fortunately after 5 failed surgeries in California and ending up in a coma and on a life support machine. (I was in agonising pain, not properly diagnosed and doctors did not take me seriously. It was awful. So I took a massive overdose to end things. Any sane person in that amount of pain would probably have done the same) I found myself admitted to a hospital that realised immediately the reason for my overdose (that it was NOT the result of any psychological problem whatsoever; it was the result of a flare-up of chronic pain that was not controlled or diagnosed). For the first time I was taken seriously. I had happened to wake up in UCH Hospital; a hospital that has arguably the best Professor in EDS in the world (Professor Graham) and now my EDS is controlled. It doesn't have to ruin lives. It came close to ruining mine. Please sign this x btw; EDS is not all doom and gloom; if controlled a person with EDS hypermobility type can actually an have a great advantage in a variety of activities such as ballet and music, particularly in playing the pi

]]> Wed, 15 Apr 2015 03:42:23 UTC 18760342 https://www.gopetition.com/signature/locate/18706346?utm_medium=rss Thu, 26 Mar 2015 11:56:14 UTC 18706346 https://www.gopetition.com/signature/locate/18691864?utm_medium=rss Mon, 23 Mar 2015 01:15:51 UTC 18691864 https://www.gopetition.com/signature/locate/18657300?utm_medium=rss Sun, 15 Mar 2015 09:43:30 UTC 18657300 https://www.gopetition.com/signature/locate/18522500?utm_medium=rss Mon, 9 Feb 2015 01:44:10 UTC 18522500 https://www.gopetition.com/signature/locate/18513588?utm_medium=rss Sat, 7 Feb 2015 12:44:25 UTC 18513588