Save Jack - Dr. Carson

Jack is 4 years old. He has endured 48 surgeries/tests under general anesthesia. Jack has endured over 200 procedures awake. He takes over 25 doses of medicine each day. He cannot eat any food due to severe food intolerance. He understands well and is very receptive. He has cranial nerve damage so he is not able to speak well. He does talk and sign. But most of his communication is non-verbal. Which makes him very perceptive and animated.

Our son has a very rare genetic syndrome that is undiagnosed. Jack is 4 years old.

His conditions include:

Interstitial lung diseases: ABCA3 Surfactant, Dysfunction, Bronchiolitis Obliterans, Tracheomalacia, Bronchomalacia, Ineffective Cough, Obstructive Apnea, Central
Apnea, Hypercapnia, Hypoventilation, Hypoxemia, Chronic Respiratory Failure, Hydrocephalus, Stiff Ventricles, Arnold Chiari Malformation, Macrocephaly, Posterior Cranial Fossa Disproportion, Cranial-cervical instability, Basilar Invagination, Retroflexed Odontoid, Cortical Visual Blindness, Hyperopia, Accommodative Esotropia, Ptosis, Amblyopia, Anisocoria, Nystagmus, Strabismus, Atrial Septal Defect, Cardiac Dysrhythmia, Sinus Tachycardia, Dysautonomia, Inguinal Hernia, Undescended Testicles, Eosinophilic Esophagitis, Food Intolerance (to all foods), Apraxia of Speech, Allergies, Micrognathia, Short Stature, Heat Intolerance, Oral Dysphagia, Oral Apraxia, Sensory Processing Disorder, Gastroesophageal Reflux Disease, Joint Laxity, Chronic Pain, Hypotonia, Neuro-muscular disease, Chronic Fatigue and an Undiagnosed Genetic Syndrome.

Currently Jack's expansion was not done right and created abnormalities that this Dr. isn't sure if it is fixable or not until he gets more scans. This won't correct his instability but it will help the bad headaches. I will try to find another option for the fusion after we fix his skull. I will be gathering everything to send to them this week. We need Dr. Ben Carson to do this surgery!

http://jessica-jackjack.blogspot.com/